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the thread of ATRIAL FIBBING

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a month or so back i went for my six monthly asthma check-up: all fine -- a bit breathless, a bit overweight, but nothing to be alarmed about… except my blood pressure was unusually (tho not wildly) high… the nurse suggested i talk to the GP

a week later i saw the GP: blood pressure now more or less normal (the first reading seems to have been an anomaly)… but did i know i had an irregular heartbeat: i did not. he sends me for an ecg there and then and calls in another, more experienced colleague -- yes, atrial fibrillation, or AF, as everyone calls it. one of the chambers of the heart -- atrial is from atrium, latin for a large open space within a building -- is not pumping properly with the rest, but kind of fluttering quite fast… doing the work, but in the wrong way

quite common, in itself quite treatable -- higher risk of strokes, underlying causes can be sinister, need to look out for heart attacks

i had been feeling a little odd recently: in particular when waking up, a bit lightheaded, a but buzzy and fluttrry, as if the blood were thrilling in my fingertips (not quite tingling, i can never quite find a better word than thrilling, tho doctors look blank when i use it) -- was this related? maybe

referred off for blood tests (next day) and echo cardiogram (appointment a month away): warned to looking out for breathlessness (asthmatic, hard to spot), chest pains travelling to arms and throat -- if these occurred, call GP or at weekends go to A&E -- and keep the warning threshold low, better safe than sorry

OK: once you're advised to look out for chest pains -- for fear of a heart attack -- you notice a LOT OF SENSATIONS IN YOUR CHEST… plus i was intermittently feeling fluttery and odd, not bad exactly but not myself

the saturday following this GP visit, i felt distintictly weird with -- i don't know to call them -- not pains, certainly not shooting pains, but mild sensations of griping in my chest, mainly to the left of my heart… talking to NHS helpline (111); they asked a lot of questions abt symptoms (mostly negative) and go to A&E -- better safe than sorry

triaged at A&E (another ECG) and then a very long wait -- clinic is largely full of young people with amateur sporting injuries… i am not seen for some hours, probably because not instantly urgent. when seen, instantly given a disprin and CLOPIDOGREL to thin blood: diifferent kinds of decoagulant

describing symptoms to a doctor whose english isn't great: making her laugh when she ask "do you feel pain anywhere?" and i say "i'm 56, i feel pain everywhere"

hooked up to a heart monitor and left: monitor beeps trills with alarm whenever irregularity of beat gets too extreme; a nurse comes to turn the alarm off. One asks me if I’m breathing — I say, “What?” as I couldn’t quite believe the question and she says, “Computer says you’re not breathing but you must be, you’re talking to me,” and went off chuckling to herself.

Doctor comes back to take blood — as clumsily and painfully as I’ve ever had blood taken. Also unsuccessfully: she had to get a nurse to do it all over again (nurse rolling eyes and muttering “doctors,” at herself and a little at me). .More waiting: the curtain is drawn back so I can watch activity on the ward and occasionally hear my name mentioned. Lots of people in a desperate state: I’m feeling a bit of a fraud or a nuisance, though no one says so. Unsure if being let home that evening (main worry: I'm cat-sitting -- who do i call to dep for me and how to sort this out logistically, the key to my neighbour's flat is in my pocket). Also phone running low.

Sent for x-ray: wheeled there on my bad by a very chill and amusing porter who asks if i like going fast and pushes the bed down an empty corridor VERY fast, x-rayed by a very camp and anxious x-ray operator w/a big red hipster beard.

Shift changes: new nurse chatty comes on and explains stuff (inc.the wait). Doctor returns: all tests are negative, but my AF is fast (I was right to come in) and she prescribes DIGOXIN. Home again -- sleep better, thx to digoxin.

GP again: he affirms that all tests are negative (meaning no sign of impending or previous heart-attack, and some underlying causes ruled out). Chest x-ray also shows nothing sinister: apparently I have a blunted right angle -- but he seemed unworried by it. takes me off DIGOXIN and onto BISOPROLOL (a beta blocker, small dose at first in case it interferes w.asthma: in the event it does not) and refers me to a cardiologist. cardiologist visit is a bit of a frustrating dud imo: he talks mostly to himself, can't open his computer to see my relevant records (he's a locum), talks abt CARDIOVERSION (which the GP had been cautious about), which will need me going onto decoagulants and seems to think I shd have a much higher does of bisoprolol… mainly he's cross with me that the echo cardiogram hasn't happened yet.

(cardioversion is an electric shock to jumpstart the delinquent atrial chamber into synching with the rest of the heart: decoags bcz blood can pool in a fibbing atrial chamber and form clots, and the jumpstart can release it = risk of stroke)

so that is where i am: the beat-blockers are working well (i was a bit insomniac for a while but it's not a routine side-effect and may well have been pre-trump anxieties); echo cardiogram is next month -- then back to a cardiologist (i hope a different one) to discuss cardioversion or other treatment. i feel myself again, am sleeping properly, off all caffeine (and past the caffeine hangovers), dieting reasonably rigorously and planning to exercise more any day now (high-intensity work-outs are contraindicated lol), drinking only red wine now and then…

plus feeling a bit sorry for myself. and bcz i can't help feeling this was a bit self-inflicted (causes are various -- sometimes never determined -- but two likely ones are caffeine and being overweight and out of condition) (plus a month's stressing over that kickstater may not have helped), a bit guilty also :(

― mark s, Saturday, 12 November 2016 10:49 (nine years ago)

I wouldn't beat yourself up about the caffeine. The latest guidelines say it is unlikely to cause AF:

"Habitual caffeine ingestion has been investigated in several prospective cohort studies (Table 9), but these failed to show any significant relationship to incident AF.168 Also, heavy coffee drinking167 failed to demonstrate a significant relationship between caffeine and AF or flutter even in very high consumers (10 cups, 1000 mg/day). Overall, caffeine consumption on a habitual and regular basis does not seem to increase the incidence of AF."

― Zelda Zonk, Saturday, 12 November 2016 12:00 (nine years ago)

By the way I interviewed a cardiologist who is an expert in AF the other day (I'm a medical journalist), and because both my parents have AF I asked him what I should do to maximise my odds of avoiding it. He said: control your blood pressure, control your weight, and if you have sleep apnoea get it treated.

― Zelda Zonk, Saturday, 12 November 2016 12:14 (nine years ago)

Might talk to my GP about sleep apnoea -- not aware that it's a problem, tho i do get sleep paralysis now and then.

― mark s, Saturday, 12 November 2016 12:28 (nine years ago)

and thanks ZZ, i started t thread to find stuff out, not (just) to talk abt myself

― mark s, Saturday, 12 November 2016 12:39 (nine years ago)

good thoughts to you mark - let's hang out soon?

― Bein' Sean Bean (LocalGarda), Saturday, 12 November 2016 13:00 (nine years ago)

yes! (thank you)

― mark s, Saturday, 12 November 2016 13:07 (nine years ago)

good thoughts.

my father also has recently had some of those issues (faints, trips to the hospital, checks about two years ago) (there was a risk of irregular heart beat at some point too, but it was a kind of precautionary talk).

Anyway he has been lightly exercising regularly and is feeling much better, and has had to be very very disciplined about his diet (he has cut off ALL drinking)

― xyzzzz__, Saturday, 12 November 2016 13:48 (nine years ago)

POINT TAKEN

― mark s, Saturday, 12 November 2016 14:24 (nine years ago)

Atrial fibrilation is an area where "excessive" aerobic exercise appears to have harms. A number of cardiologists (most publically James O’Keefe) favor some moderation (1-20 mi/wk running equivalent, but not more) because of AF, hypertrophic fibrosis, and increased atherosclerosis in high intensity runners.

5 times more AF in athletes than non-athletes
19% more AF in those exercising more than 5 hr/wk

― Distribution of all possible outcomes (Sanpaku), Saturday, 12 November 2016 14:41 (nine years ago)

first reaction: i don't take tips from james o'keefe!
second: no danger here of excessive aerobic exercise tbh -- once my weight is down a bit and my asthma under better control i will explore stuff that's *gently* aerobic
(maddeningly the london fields lido is closed for refurbishment for the next few months: swimming is my usual outlet, with a nice brisk walk back and forth)

thx for links :)

― mark s, Saturday, 12 November 2016 14:47 (nine years ago)

I believe AF is often congenital, and many people have it all their lives and don't know it until it's diagnosed ... wondering if/whether you caused it or could have prevented it seems like a natural reaction but also a source of needless stress.

My father has been treated for AF for a long time and it seems not to have affected his quality of life very much (at 82 it's not at the top of his long list of medical problems). The blood-thinning drugs now in use seem to be much better and safer than what he was prescribed 25 years ago.

― Brad C., Saturday, 12 November 2016 15:14 (nine years ago)

One nice aspect is that this is the one area of my life in which people routinely describe me as "young"! Admitttedly my GP -- who is literally 12 -- grinned a bit as he did so the first time, but it was still pleasing to hear, if unconvincing.

― mark s, Saturday, 12 November 2016 15:21 (nine years ago)

woke up at 6-ish with fingers tingling* again, first time at this degree since i went onto beta blockers -- v mild symptom in itself, but it's the one everyone i've seen seems to skip over, as in "oh, i don't know if that's linked" -- ok but something must be causing it, it only started a few weeks ago

*except this isn't the right word

― mark s, Thursday, 17 November 2016 10:05 (nine years ago)

consequence: tired all day, not got much work done, can't focus (this is lack of sleep but the fingers thing seems to cause that)

could maybe up my BB dose but shd probably check with a doctor first

― mark s, Thursday, 17 November 2016 15:17 (nine years ago)

two weeks pass...

ok so i just came back from my ECHO CARDIOGRAM

the nurse taking the reading sad: "apart from the arrhythmia nothing to worry about here, everything heathy and being kept under control, nothing running away with itself" -- i choose to read this as GOOD NEWS! the info will go back to the cardiologist i didn't take to and he will write to my GP and it will decided if/when i go onto to CARDIOVERSION

in terms of my self-care, basically the daily dose of beta blocker are effectively keeping everything chill, maybe twice a week i feel my fingers are fizzing and thriilling a bit and up the dose a bit

i am fully off coffee for three months more or less -- that one cup i had three weeks ago really made itself felt, and as it seems a bit daft to be necking beta blockers just to undo the effect of a strong cappuccino i will no repeat the experiment

alcohol: red wine seems fine (as per medico-urban-mythological factoid re heart health); beer's effect i notice a bit more so i will probably stick to red wine; anything wildly salty (like a large packet of crisps) seems to get my heart pit-pattering (though a good long slug of water seems to calm it down)

i am sleeping excellently (absence of coffee, who knew! beta blockers may also be contrbuting): literally for the first time in my life routine fast asleeply as head hits pillow -- i am more aware than i ever was of the degree to which yr heart responds to and contributes to matters emotional (which is obviously like DUH! given every document slurched out by the romantical-industrial complex but is still a surprise to notice when you have a condition novel enough to notice variation as it happens) -- life is just a never-ending forest of feels and yr organs are right in there working at that

so yes: next task, try and lose a bit of weight over xmas so the cardiologist doesn't make more unkind comments i guess

― mark s, Wednesday, 7 December 2016 16:12 (nine years ago)

oh, also: i am definitely more physically tired at the end of the day than i'm used to being -- presumably bcz my pore wee heart is not currently able to oxygenate my blood so effieicently, one chamber is pumping much more to less effect

^^^possibly also the absence of the energy-shifting effect of coffee is contributing to this feeling -- viz i am no longer waking up tired and sluggish, which was pretty routine when i was highly caffienatated

― mark s, Wednesday, 7 December 2016 16:15 (nine years ago)

ps you get to hear the magnified sound of yr own heart with an echo cardiogram, and in my case a more unconvincing and indolent arrhythmic squelch it is hard to imagine :\

― mark s, Thursday, 8 December 2016 10:23 (nine years ago)

one month passes...

belated update: two saturdays ago i fainted in the bathroom, banging my head quite sharply on the edge of the bath as i fell -- i spent the afternoon in A&E being checked out

conclusion: no concussion, and incident semi-unrelated to AF -- i have also suffered from VASOVAGAL SYNCOPE all my life (proneness to to faint: going through puberty i was toppling over like an automated ninepin) and apparently it has a tendency to return in middle age. it occurs bcz the body is not able to regulate blood pressure with the swift exactness it's supposed to (so e.g. it ends up in yr legs not yr head when you stand up too quick?)

probably -- this was my sister's suggestion (she also suffers from VS, plus her partner has AF) -- the beta blockers slightly exacerbate the tendency to sluggish regulation, so i shd take it seriously when i feel dizzy and not just sit down but LIE down, with legs elevated if possible…

― mark s, Friday, 27 January 2017 11:47 (nine years ago)

ffs! :/

― illegal economic migration (Tracer Hand), Friday, 27 January 2017 11:51 (nine years ago)

Hope you're keeping well since then, dude - a friend of mine has a proneness to proneness brought on by having a wee - this is only amusing for everyone else.

― Andrew Farrell, Friday, 27 January 2017 11:55 (nine years ago)

yes i've been fine since, no recurrance, and the doctor i saw talked me through the various triggers, so forewarned is forearmed (that particular one i don't seem to be cursed with)

i was actually a lot less bothered by fainting itself -- i am kind of used to it, tho it had been several years since the last time it happened -- than the fact of the bang on the head (a dimension i somehow always till then avoided)

the worst injury i sustained as a teen was fainting on the way to a music lesson with a schoolfriend after i turned my ankle stepping carelessly off a kerb (sharp pain was my primary trigger as a kid). i came to with my face pressed onto gravel and my pal kicking in the chest to "wake me up" -- he assumed i was kidding around, i think

i brushed myself off and limped into the lesson

― mark s, Friday, 27 January 2017 12:04 (nine years ago)

one month passes...

CARDIOVERSION scheduled for 20 april: an electric shock to restore proper hearth rhythm

(i need to lose a bit of weight by then, i feel)

― mark s, Wednesday, 1 March 2017 14:35 (nine years ago)

rescheduled for 18 may (and above post shd read "heart rhythm", my hearth is in good working order beats-wise)

mild irritation re poor communication between hospital/consultant's office and GP: when i first get an apoointment for this procedure, former tells me i need to be on anti-coagulants for a minimum of 6-8 weeks in preparation -- i get a letter (which i know also goes to my health centre bcz i copy and post it; i imagine it also arrives at my heath centre via the shared computer link but probably doesn't actually ping onto anyone particular's desk alerting them to this request re anti-coag)

after a week or so not hearing anything i call and leave my GP -- actually the trainee GP who originally saw me -- a message to call me, which he does the following day (he's not in every day). i ask him about prescribing the anti-coagulants: he says it's probably less complicated if i talk to the cardiology department about it, which i do

they say they'll send the request through to the health centre

i hear nothing for a few more days and ring up my GP again: he says "oh that.s naughty of them, what they should do is book you into the anti-coag clinic [or similar, i forget the actual term he used], where this is dealt with" he looks for and finds the request -- says "ok, maybe i should prescribe this directly from here, i'll just check with my colleagues if that's ok" -- which he does, fairly swiftly, so that's ok, i can pick the meds up the next day

we also both now spot that the 6-8 weeks has -- in all this fiff-faff -- been fairly sharply cut into (20 april is exactly six weeks from today) so if i do need to be on them the full whack, it's already too late. he says "maybe ring up the cardiologist and re-book"

which i do, and it's fine -- but basically the only reason any of this was sorted was me being the go-between between the two offices, which i feel is not how it's meant to work (viz if my english was poor or if i didn't have my mum's scepticism abt the ability of professionals to do the common-sense bits of their jobs better than me)

(tbf my gp is lovely -- if young -- and i enjoy talking to him; and ditto the person on the phone in cardiology -- the consultant was a bit of a twerp but with luck i will be under anaesthetic during my next dealings with him)

― mark s, Thursday, 9 March 2017 17:40 (nine years ago)

my mum's scepticism was abt the ability of professionals being to do the common-sense bits of their jobs better than HER: she generally thought i was also p bad at this kind of stuff)

― mark s, Thursday, 9 March 2017 18:22 (nine years ago)

one month passes...

update: after a suggestion from my sister's b/f -- who has the same condition and is on the same meds -- i switched the time of day i take my beta blockers from morning to evening

as a result i am MUCH LESS TIRED during the day (in fact back to normal), bcz my tired period as a consequence of the beta blockers coincides with actually being asleep (and in fact i sleep really well)

(i was told to take them in the morning initially bcz they sometimes affect ppl w/asthma, and also some ppl feel nauseous -- my GP felt i shd be fielding these reactions during the day when i could go into the health centre and not in the middle of the night when i'd have to go into A&E -- but as i am not having either reaction it seems an unnecessary precaution) (plus also switching them to evenings is clearly working better)

― mark s, Tuesday, 25 April 2017 19:47 (nine years ago)

Glad you're feeling better; I'd missed this thread til now. I can back up the evidence that mid-50s are not for the cowardly!

― Supercreditor (Dr Morbius), Tuesday, 25 April 2017 20:09 (nine years ago)

switching your beta blocker to nighttime is fine -- your tiredness may be simply related to decreased exercise tolerance, a common side effect of beta-blockers (even B1 selective drugs like bisoprolol), especially in people like you with underlying pulmonary disease (asthma). as an added bonus, there is even a little bit of literature indicating a mortality benefit from nighttime vs daytime use of antihypertensives (which include beta-blockers), though the evidence is not terribly strong last i checked

the "thrill" you feel in your fingers is actually very likely due to the AF -- when the heart is in AF, the cardiac output (a measure of how well the heart pumps blood around the body, especially the sites furthest from the heart such as the fingers) is lower due to the dyssynchronous beating. do your fingers often feel cold? this also explains your recent passing out episode (blood wasn't being pumped effectively to your brain). lightheadedness is a very common symptom of AF, and it's interesting that you mention that you've had fainting spells in the past, as you've likely had paroxysmal AF for quite some time. be sure to take your bisoprolol regularly!

being put on digoxin initially is peculiar - this drug is rarely used for AF these days

honestly if half of the people in the world were as up to speed with their medical conditions as you are, we'd spend a lot less on health care. if you're looking for a good reference, UpToDate's beyond the basics series is a really good resource for patients who care to know more about their disease and have a reasonable degree of health literacy. you can check it out here: https://www.uptodate.com/contents/atrial-fibrillation-beyond-the-basics?source=see_link

― k3vin k., Tuesday, 25 April 2017 20:17 (nine years ago)

cheers k3vin, that's all extremely useful :)

if anything the finger "thrill" is more like they're warmer than they ordinarily would be: it's not a numbness -- it's a bit like the way yr face sometimes feels when you're quite drunk, that you can feel it more than you should be able to (which is overdilation of capillaries maybe?)

i did used to suffer from cold fingers as a kid (not helped by living in a v cold house and having to do lots of musical instrument practice in unheated rooms) but i wouldn't especially say i do now

i also suffer from easily putting my leg to sleep by sitting on it like a kid, slightly awkward in an office when yr hobbling around trying to get the blood back into it, and everyone else in the office is younger than you

― mark s, Tuesday, 25 April 2017 20:29 (nine years ago)

(which is overdilation of capillaries maybe?)

i mean the face is when yr drunk, i don't see how the fingers would be

― mark s, Tuesday, 25 April 2017 20:30 (nine years ago)

after a week or so of much better response to the BBs (as taken in eve not morn) inc actually reducing my req dose to minimum suggested, a couple of days of increased fizziness and sleeplessness (necessitating, as i am on self-imposed deadline re introductory essay to my anthology, a COFFEE today, the first in maybe ten days) (i really have been good abt coffee considering the volume i've drunk in the last five decades)

cardioversion is on 18 may: everyone is saying supersafe procedure, back at work the next day etc -- even so i am trying to get the book in proper order before i go in

― mark s, Friday, 5 May 2017 10:32 (nine years ago)

Best wishes for the procedure.

― xyzzzz__, Friday, 5 May 2017 14:36 (nine years ago)

be supersafe, mark.

― Supercreditor (Dr Morbius), Friday, 5 May 2017 14:40 (nine years ago)

cheers guys :)

― mark s, Friday, 5 May 2017 14:41 (nine years ago)

All best Mark.

Timothy Gowers, famous mathematician, blogged his mathematical reasoning as to whether or not to have catheter ablation surgery for his (much later stage) AF: https://gowers.wordpress.com/2012/11/05/mathematics-meets-real-life/

― mick signals, Saturday, 13 May 2017 00:31 (nine years ago)

cheers mick, that's interesting and useful

(mr gower is i am pleased to see still blogging five years later, which is also reassuring)

― mark s, Saturday, 13 May 2017 10:15 (nine years ago)

My stepdad had that procedure in 2004 after an irregular heartbeat was diagnosed after he nearly died from pneumonia. He was a very heavy boozer and has cut it down since then, but still spends a lot of time in what he calls the fun-house (it's a casino!) playing blackjack, moderately boozing and having the odd cigar. He walks a few miles to the Town library to read the papers every morning. He is definitely in better shape now than he was 13 years ago, so it must have done him some good.

― calzino, Saturday, 13 May 2017 11:20 (nine years ago)

"that procedure" = cardioversion or catheter ablation? (which is next on my suggested list, if the cardioversion doesn't take after a couple of tries)

there's also an ablation where they insert a balloon into yr arteries and blow it up which is apparently 👌🏽 😜 👌🏽

― mark s, Saturday, 13 May 2017 12:39 (nine years ago)

meanwhile the oblique strategy i just turned up = "go to an extreme, move back to a more comfortable place" which seems on-point

― mark s, Saturday, 13 May 2017 12:40 (nine years ago)

He had the cardioversion, which I think caused him a lot of angst at the time. He said it was no biggie afterwards.

― calzino, Saturday, 13 May 2017 12:55 (nine years ago)

Good luck mark, hope yr up and at 'em again in no time

― del esdichado (NickB), Saturday, 13 May 2017 16:06 (nine years ago)

Good luck with the oblation/ablation, me and the kitten golems will be think good thoughts for you tomorrow!

― tokyo rosemary, Wednesday, 17 May 2017 15:30 (nine years ago)

thank you! i should be out again by the afternoon and able to be back at work again the following day acc.the medical profession

(tho lol to that, i am going to stay with my sister and be pampered over the weekend instead)

― mark s, Wednesday, 17 May 2017 15:52 (nine years ago)

Good luck dude, thinking good thoughts.

― Matt DC, Wednesday, 17 May 2017 15:55 (nine years ago)

Yeah good luck man

― Le Bateau Ivre, Wednesday, 17 May 2017 16:12 (nine years ago)

PAMPER ON MY FIBBING FRIEND

― illegal economic migration (Tracer Hand), Wednesday, 17 May 2017 16:26 (nine years ago)

Take care! I mean, you are doing, so just keep on with that!

― Andrew Farrell, Wednesday, 17 May 2017 16:31 (nine years ago)

ok so the excellent news is that i am up from under anaesthetic, out of hospital and down in hastings being pampered by my sister and her family -- i have to do nothing strenuous for two days which is FINE BY ME :D

the more boring news >:( is that the cardioversion did not work -- they stopped and started my heart three times but like the apostle paul it three times denied me so in c.6 weeks time i have to talk to a new consultant abt the next step ("he's electrical" acc.today's cardiologist, who also told me my "heart is stubborn") (which i am not entirely astonished to discover tbf)

anyway glad to be back in one piece (i feel fine except for a routine weather headache i've had all day, not shifted by being knocked out for 60 mins or electro-jolted apparently)

― mark s, Thursday, 18 May 2017 15:59 (nine years ago)

congrats on remaining alive, commiserations on having to do it all again

― Drive Your Lover Wild In Bed By Cosplaying As Jeff Lynne (bizarro gazzara), Thursday, 18 May 2017 16:02 (nine years ago)

glad yr feeling good! what's the next step likely to be mark?

― del esdichado (NickB), Thursday, 18 May 2017 16:19 (nine years ago)

no the caffeine decision was purely mine, not a med suggestion: and my reasoning is the headaches and the sluggishness -- plus possibly the side effects of the paracetamol i take to tamp down the headaches

i know from previous experience that once i properly kick it i can cut out painkillers altogether (i also know from previous experience that i can only kick it for a few months at a time but)

― mark s, Monday, 18 April 2022 09:54 (four years ago)

sorry you've had a rough few days, mark, how are you feeling now?

my mom has AFIB (and I'm pretty sure I'm not many years before getting it myself), her doctors have told her to limit caffeine, she says she can tell the difference if she only has one cup of coffee (sometimes half a cup of regular mixed with half of decaff), rather than a few. So hopefully cutting back will help you, although if your withdrawal hasn't stopped you could taper rather than cold turkey? My worst ever headaches were when I was in uni and taught at a summer camp; I had a strong cherry Coke habit and went suddenly to no pop at all, couldn't figure out why these stupid kids were giving me a headache everyday and finally realised it was cold turkey from caffeine.

― colette, Wednesday, 20 April 2022 03:52 (four years ago)

generally fine yesterday, mildly headachy this morning (day 11) -- monday was very bad but i think that was a weather migraine sneaking in there lol (difft bit of my head)

it's not like i was even drinking very much coffee any more, there's nowhere really to taper to! tiny little cups? plus i know myself well enough to know that tapering won't work where cold turkey actually might, at least for a while

― mark s, Wednesday, 20 April 2022 10:03 (four years ago)

Another alt to cold turkey/tapering: Sometimes when I've needed to temporarily abstain, I've found that my body can be fooled or satisfied by the taste etc. of decaf--dunno if this would work long-term, though.--

― dow, Wednesday, 20 April 2022 23:26 (four years ago)

think i'm over the hump cold turkey-wise -- it definitely took longer than usual

i went in for a blood test yesterday and the nurse told me to contact her if my blood pressure remains high; i'm meant to be seeing my own GP about all of it but (bad timing) she is on holiday till first week of may. i think i probably need the dosage my BP meds (RAMIPRIL) to be raised. also i need to talk to my cardiology specialist abt my raised pulse rate (ideally without being sent to A&E in the interim, which i want to sidestep for COVID reasons if possible) (this happened pre-COVID, basically a needless stay in hospital i feel) (see upthread for the tale… )

(i don't really want to be seen by the doctor i saw a couple of weeks ago, i find her very confusing to talk to)

― mark s, Thursday, 21 April 2022 10:09 (four years ago)

two weeks pass...

just aced my blood pressure check lol yay

health centre pharmacist then describes symptoms of high blood pressure (= headaches) and of low blood pressure (= fainting when you stand up): naturally i suffer from BOTH of these most of the time

also she said “you’re still very young” — ok then, yes that's correct i am

anyway i have booked a big "where we are now" face-to-face with my GP next week to talk abt all my many ailments and how they interact and what i shd do abt them (this is partly bcz if i am moving out of london and away from this i think unsuually good health centre i am going to be gambling with the kinds of NHS uselessness that e.g. colonel poo rightfully decries -- better get the good stuff while i still have good access)

― mark s, Thursday, 5 May 2022 10:46 (four years ago)

nice to hear this mark.

have you done any looking yet at what's going to be available near you?

― Tracer Hand, Thursday, 5 May 2022 11:56 (four years ago)

not yet no :|

― mark s, Thursday, 5 May 2022 12:02 (four years ago)

might not be a long piece of research lol

― Tracer Hand, Thursday, 5 May 2022 12:04 (four years ago)

nice possibly final visit (since i’m moving out of london) with my primary GP of nearly 40 years, just to have a face-to-face to jigsaw together the implications of all my ailments: for which the answer is mainly (a) re the topic of this thrread viz my high pulse-rate get my cardiology consultant to move his ass and give me a rescheduled appointment (she thinks more ablations are pointless but says he's the one whose knowledge counts and i will likely have to change meds somewhat as BISOPROLOL is evidently not doing what it needs to

as for my asthma more exercise and lose a little weight lol. the headaches are “stress” headaches (ie who knows what causes them, maybe just the state of the world) and (she is old-school) paracetamol is fine in moderation and not implicated in blood pressure (which is now back to normal). i’m booked for a hearing check re my tinnitus and try epley exercises for my labyrinthitis. anyway she is a good wise person (actually my favourite GP at the centre even if i nearly never see her) and i will miss her

i mentioned the *other* GP i saw a few weeks ago to my sister (who was also a patient at this centre for many years) and she laughed and said "she always made me feel i was being told off" -- which, well, true, me too, but i guess i kind of feel i deserve to be told off so it doesn't really register

― mark s, Tuesday, 10 May 2022 15:57 (four years ago)

maybe stress headaches in part from getting more writing-editing gigs, also re health and considerations of moving from London---maybe try this very basic form of meditation I read about, which is sitting for 20 minutes not thinking about much: I tried sitting on bench by front door of library after hours on a short day, mostly sheltered from the evening sun, but with a glow around the frame, just the occasional passing car, although I did sneak peeks at my travel clock, will try to do better about that ("trying" all this keeps some tension in there but I've only started these breaks).
My tinnitus long ago became part of the environment, and occasionally I think I hear crickets. Having doctor remove ear wax helped (don't try it yourself, though there are kits). Easy on the headphones for a while after that.

― dow, Tuesday, 10 May 2022 17:32 (four years ago)

four months pass...

in the end i wrote a letter to my cardiologist, one copy to barts and one to the royal free (he does consultation at both) to point out that i was due a rescheduled appointment after the pandemic cancellation in december and it was now something like eight months?

anyway i got a reply and now have an appointment in november -- that's quite a gap but tbf i haven't been suffering or i'have made more fuss

meanwhile in jab news: i got flu *and* my covid booster this afternoon 💉💉

i: an old lad in the packed waiting room was quietly looking at facebook or youtube or whatever on his phone and got ambushed by a VERY LOUD advert screaming at him for not satisfying HIS WOMAN and he needed [such and such a pill, didn't catch its name despite volume] which is SIX TIMES MORE POTENT THAN VIAGRA etc, anyway he found the off button eventually
ii: the pharmacist pronounced it "omnicron" (am i a dick for find this funny? yes i am) (same question-answer to part i)
iii: afterwards he said "i strongly advise you to eat a banana! this will deplete your energy!" i asked did he mean in the next ten minutes or later today (i was already on my way to MS afterwards) and he said "over the next two weeks!" -- which again made me laugh (no one strongly advises you to eat a banana in the next two weeks). luckily i had my mask on so no one spotted i am finding them funny: apparently my being-a-dick levels are off the chart today

my original anti-COVID jab and the two boosters were both pfizer and i had no symptoms at all (ditto the time i tested positive with the thing itself); this was my first dose of moderna so it wd absolutely serve me right if i get the works, we shall see

― mark s, Saturday, 24 September 2022 15:36 (four years ago)

I thot it was omnicron! Let's all go to see allll thee timelines at the Omnicron.

― dow, Saturday, 24 September 2022 16:49 (four years ago)

turns out that eating bananas is good, when did i forget this

― mark s, Sunday, 25 September 2022 15:55 (four years ago)

they gots potassium, also they taste good (to me)

― dow, Sunday, 25 September 2022 17:33 (four years ago)

three months pass...

ketchup inc.minor downstream implications

so after asll the faff i scored an appointment w/my nice consultant in mid-november, at which it was decided to put a pause on further procedures for the time being: my fib has calmed down into flutter (viz the aberrations form regular rather than wild-party patterns) and my resting pulse rate is only *exactly twice* a normal pulse rate (c.126 instead of 60ish). but as i have no other symptoms we decided let's just observe for the next six months and decide the way forward then

so far so good, except today i was in for a bunch of tests and a chat with the consultant anaesthetist abt an entirely unrelated procedure: not urgent -- the condition is a minor inconvenience tho i cd do without it -- but also something the meds think is worth tackling. tests all fine and i have a letter from my cardiologist to say "yes i know his pulse rate is twice what it should be, here's why that's no emergency", which helps orientate the student that does the ECG.

anaesthetist also talks through all of this and explains the best kind of anaesthetic for the surgery (spinal not general) and what that entails (off blood thinners for three days, longer if there's bleeding afterwards, as there might be). strongly advises i do sleep studies to see if i have sleep apnea (i don't think i do but he's the specialist). and then says he thinks given my heart condition that i'm probably high risk in the context of the surgery being explored, and he's going to postpone it until he's talked to my cardiologist. since there's a chance of clots and embolisms and also just general heart chaos courtesy the anaesthetic. "and we wouldn't want that" -- well no we wouldn't

i was planning to postpone it anyway as i'm in the middle of moving house and it feels like too many things at once! so this isn't a catastrophe. but it is the first real-world consqeuence of the condition since they admitted me (in 2019? see above) for a week, for racing pulse…

― mark s, Wednesday, 4 January 2023 16:26 (three years ago)

I think you can do sleep studies now in the comfort of your own home so that's a plus

― | (Latham Green), Wednesday, 4 January 2023 17:07 (three years ago)

i asked abt this and they said no it's in the hospital

― mark s, Wednesday, 4 January 2023 17:10 (three years ago)

If you do have surgery, the anesthesia may make you lose some words for a while: they'll say Oh Noes, what could it be, better run some neurologicals---but (judging by the experience of several friends & relations in recent years), it may well turn out to be anesthesia---if they can't find any other cause and the condition is temporary, that is. Can last up to 3-4 weeks, at least it did for a couple of the people I know who were affected.

― dow, Thursday, 5 January 2023 01:06 (three years ago)

better safe than sorry obv but i've actually been under full general anaesthetic since the fibbing began -- albeit for fibbing related procedures so i guess they have the heart under close observation throughout

and they didn't involve sharp cutting knives which this one in a small way would

― mark s, Thursday, 5 January 2023 13:54 (three years ago)

hope this goes well for you

― | (Latham Green), Thursday, 5 January 2023 15:16 (three years ago)

waiting for a phonecall from my health centre following up on the letter the anaesthetist sent to my GP, which fingers x-ed is just admin

meanwhile ATRIAL FIBRILLATION was trending on twitter this morning -- partly bcz it's apparently stroke prevention day (tbc i am in favour of stroke prevention) and partly bcz thousands of anti-vaxx numpties are busy screeching that AF is caused by the jab (clue: it is not)

― mark s, Thursday, 12 January 2023 16:03 (three years ago)

oh the letter arrived at my house also, he thinks i am at risk of sleep apnea and wants me to take a sleep studies test -- which fine, sure, w/evs

― mark s, Thursday, 12 January 2023 17:22 (three years ago)

Believe me, taking one and getting CPAP was a game-changer for me!

― Ned Raggett, Thursday, 12 January 2023 18:27 (three years ago)

yeah it made a big difference for mr veg also

― werewolves of laudanum (VegemiteGrrl), Thursday, 12 January 2023 20:10 (three years ago)

Same for me - especially helping with racing heart in the middle of the night stuff.

― Jaq, Thursday, 12 January 2023 20:20 (three years ago)

six months pass...

turns out -- six months later -- that i have no significant sleep-disordered breathing tho i do have "severe snoring" lol, sorry neighbours i can't hear it and it doesn't affect me

― mark s, Saturday, 15 July 2023 10:29 (three years ago)

three months pass...

quick atrial update: despite ongoing adventures with vertigo lol, my annual check-up went v well -- the consultant (the same cheery guy who i have now seen in three sepeatre hospitals, barts in smithfield, the royal free in gospel oak and this time in fkn ENFIELD) (nice shiny modern building tho) was v positive: my heartrate may be a bit faster than all you sad normies but i am otherwise reassuringly asymptomatic (viz this higher rate causes me zero distress) and he thinks no further procedures are necessary at this stage 👍🏽👍🏽👍🏽👍🏽

(not even sure what these procedures wd acually be: more cardioversions and ablations? on towards a pacemaker? anyway, we not going in that direction yet)

(i have a friend whose grandad had 18 !! ablations and lived into his mid-80s so i am chill either way, tbh i just want a quiet life and life in plymouth is exactly this, between the world-historical storms anyway)

― mark s, Wednesday, 8 November 2023 11:50 (two years ago)

Hooray! (but sped up so it doesn't sound like whalesong to you)

― Andrew Farrell, Wednesday, 8 November 2023 14:36 (two years ago)

ten months pass...

interim update (non-fib related): just got the all-clear from exeter clinical genetics dept re the mutated and cancer-causing SDHA gene detected in another wing of my family: i did NOT inherit it so in that small sense i seem to be in the clear

(writing it down publicly here as i am quietly relieved: the testing of this was bludged up by me moving out of london and i had to restart the whole process 18 months after first begun -- however it is now complete and the outcome is good)

annual check-up for ASFib in a month's time: all interim pulse tests suggest while my heart is a bit high it is not wildly high; BP is also a bit high but just abt kept in the good zone by RAMIPRIL -- in general old-man news i am a mass of unwanted aches everywhere but none of them are a danger sign

― mark s, Saturday, 5 October 2024 10:48 (two years ago)

Excellent news.

― xyzzzz__, Saturday, 5 October 2024 10:52 (two years ago)

man the second i turned 50 the unasked-for aches became a v real part of my life. anyway great to hear mark!

― Humanitarian Pause (Tracer Hand), Saturday, 5 October 2024 11:25 (two years ago)

glad to hear it!

― werewolves of laudanum (VegemiteGrrl), Saturday, 5 October 2024 17:20 (two years ago)

Yeah, good news!

― Andrew Farrell, Saturday, 5 October 2024 17:49 (two years ago)

Cheers!

― dow, Saturday, 5 October 2024 19:36 (two years ago)

Good to hear!

― Blitz Primary (tipsy mothra), Saturday, 5 October 2024 21:10 (two years ago)

Just saw this---did yall know about it? Hey Doc!

Arm position during blood pressure check may lead to wrong reading, study finds
Common arm positions during screening can cause a significant increase in the systolic pressure number.

https://www.nbcnews.com/health/heart-health/arm-position-blood-pressure-increase-hypertension-check-rcna174245

― dow, Tuesday, 8 October 2024 02:32 (two years ago)

i literally had this discussion with the nurse the last time i was in, for some pointers when i was taking my own BP

― mark s, Tuesday, 8 October 2024 08:54 (two years ago)

i already knew it has to rest on a surface tho

― mark s, Tuesday, 8 October 2024 08:55 (two years ago)

one year passes...

I incl. this update in email (to mark and others) just now:

I recently had my first follow-up to the early Sept. catheter ablation, and still no afib, no "significant" irregularities at all. Also no aftereffects of the procedure, though there can be quite a few (before consenting to go through with it, I researched the research on these, found a pre-Trump gov study that reported a 1 % chance of any of them occurring, so went with that)(Mayo Clinic site said that first catheter ablation only has 50 % chance of success---second try:80%---but so far it's worked for me)

― dow, Friday, 16 January 2026 02:29 (eight months ago)

six months pass...

just reminded why i like to talk with cardiologists: unlike most everyone else in the entire profession* they are v chill abt the activity of the heart: story is too involved & boring to relate, lets just say an anaesthetist involved in a pre-assessment was panicked on tuesday by my then-heartrate & said TALK TO YOUR GP IMMEDIATELY

so i did and the GP (former active in a cardiology dept) basically broke out into what i posted upthread: “heart rate ain’t nothin but a number”

"dude you have AF, it will be all over the place all the time, youre fine, what is that guy's malfunction lol"

*this is of course very unfair

― mark s, Thursday, 6 August 2026 15:59 (two months ago)

As long as you're ok.

― King GrimSon (Pfunkboy of ILX), Thursday, 6 August 2026 17:01 (two months ago)

oh yeah, im fine, thank you: minor unscary surgery 3 months ago to keep me in working order, unrelated to thread issue: check-in follow-up next week, some discomfort expected for a few days probably

a thing i do need to look into in a few months time is i might have a early and mild case so far of DUPUYTRENS CONTRACTURE in my left hand, which has been messing a bit with my piano playing -- nhs only covers more serious advanced cases so i'd probably have to go private for treatment if merited :(

ill put it on its own thread when i get there tho (ignore the photos of it online, it's nothing like that and may never be) (“fingers x-ed” lol)

― mark s, Thursday, 6 August 2026 19:05 (two months ago)

Good luck with that ✋✋

― xyzzzz__, Thursday, 6 August 2026 21:12 (two months ago)

Yes, good luck Mark.

― King GrimSon (Pfunkboy of ILX), Thursday, 6 August 2026 21:12 (two months ago)

xxpost High Mark, you recall that Chuck E. has also posted about having said contracture, though said it's most likely to recur in weather below 50 Degrees F, think it was (he was trying to decide about driving from Central TX to Northen-Lower-Peninsula-Michigan in winter). Hope check-in goes well; I've got one in Sept. too, though for op last year.

― dow, Thursday, 6 August 2026 21:29 (two months ago)

you may or might recall, I meant.

― dow, Thursday, 6 August 2026 21:31 (two months ago)

Sorry, Sept. "too" cos I thought you said next month, not week. So I guess you might experience the contracture more in cold weather?

― dow, Thursday, 6 August 2026 21:38 (two months ago)

cheers dow, i had not spotted that re chvck, thank you -- i only have a tentative early diagnosis so far, via a non-specialist GP. i will look out for cold-weather symptoms!

― mark s, Friday, 7 August 2026 08:24 (two months ago)

one month passes...

it's been properly diagnosed so here we go:
dupuytrens contracture aka the CURSE OF THE MacCRIMMONS

― mark s, Monday, 21 September 2026 14:46 (two weeks ago)


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