It's So Noisy at the Fair: The Diabetic Thread

Crossed the threshold a month ago--no surprise after three decades of eating whatever felt good.

There've got to be others on here too. I want this to be somewhere where I can come and ask any questions. The internet's helpful but erratic. And my doctor is terrible. (She's literally the only doctor still taking patients in my small town, and to get a new one I'd have to cut her loose first--risky.)

My frame of mind, after the initial shock, is good. My reading on the blood test that uncovered this was 9.6; after two weeks of drastically altering my diet, it was down to 9.0. Follow two more weeks of that, plus two pills a day, my home readings have been 7.8, 6.4, 6.3, and 5.9. I had another blood test on Monday, which produced a reading of 10.1, but I know that's a months-long average, so I'm taking the home readings to be more current. (Typical example of my doctor's incompetence is the e-mail that accompanied the latest lab reading: "Your average blood sugar is coming down, it is 10.1, this is good carry on." It would have been a lot of trouble to actually check that, evidently.)

Anyway, looking for positivity, and please, no gruesome tales of the worst that can happen (visions that dominated my thoughts the first few days after finding out). Spoke to a friend of my dad's, in his 80s now, and he's been managing it for 30 years.

my dad got diagnosed a few years ago (he's in his 70s) ... he is doing pretty well for a man who can no longer eat donuts, and he was very fond of donuts.

Oh man--my Achilles heal (pastries in general), as witness a couple of Tim Hortons threads on here.

Um, heel.

I got diagnosed several years ago after a lifetime of eating like a college freshman. I immediately cut out soft drinks, cut way back on pasta and beer and ice cream, and quit making homemade bread. The last was the saddest if not the hardest part. I've been treating it with metformin and glipizide and my A1C hangs around 6.3 to 6.5, fasting sugar around 105-110. The most heartening thing has been eye exams over the past years, where the optometrist says he wouldn't be able to tell I had diabetes from a close look at the eyes, no damage at all. Ironically, diabetes sort of gave me my second career as a bartender, when I started studying spirits and cocktail science after m/l quitting beer.

ILX0r unperson to thread!

That's encouraging, WmC. My vision's always been an issue--glasses since grade 4, tri-focals for the past decade--so I don't know what will happen there. I figure I've probably had this for the past 1-2 years, though, and I don't think there's been anything unusual during this time-frame (I've been tested for glaucoma).

"A lifetime of eating like a college freshman"--well said. For me, besides the pastries, it was guzzling fruit juice every summer, pasta and rice, periodic chocolate binges, bread and bagels, and the usual love of cheeseburgers/fries/pizza.

With all the changes the past few weeks, one bit of good news is that I'm less than a pound away from dropping under 170 for what I'm pretty sure will be the first time this century.

Takes me three tries to get a reading every time I do one of these finger pricks. I'm only doing one a week, otherwise this would get expensive fast.

diagnosed with type 2 diabetes 2 years ago. big diet changes (no more soft drinks / fruit juice, way less carbs and far less sweet stuff) and around 10 miles of very brisk walking every day reversed it. all that walking means i can sometimes eat a bit more of the stuff i love but need to cut out than i'd be able to otherwise.

diagnosed type 2 in March
A1C was 8.9 and now after metformin, diet & exercise my last test was 6.1 so I’m getting there

daily fasting finger tests are usually in the 110-120 range

finger tests feel fucking pointless tho tbh without measuring pre and post meals but doc doesn’t seem to see the need so

(my eyesight is a bit of a battle still, as that was what led to my diagnosis, i had a vein occlusion behind my eye brought on by diabetes & high blood pressure that is now being treated w injections but it’s unclear if i’m to do this forever or if it will “clear up”)

i’m working hard at building new eating habits, trying not to long for things i can’t eat anymore. enjoying new vegetables and i look forward to daily walks which i never ever thought would happen. did successfully make a sugar-free cheesecake and shortbread which at least scratches my baking itch & helps me through my first holiday without a houseful of pies and cakes.

i think the worst part is all the conflicting info online & bored doctors leaving you to your own devices which was def my experience as well.

the most helpful mindset for me has been, perfection is not the goal. the goal is just, you know, “better”. even a little bit better is good. don’t eat things you don’t like, don’t punish yourself. it’s not prison, it’s just a new lifestyle. how you feel is what matters the most. and: don’t let numbers ruin your day.

idk. it’s a learning process

Diagnosed Type 2 in 2003 or so. It came on suddenly; I went to the doctor because I had lost a lot of weight in a matter of a couple of weeks (from 205-210 I dropped to about 175), was dying of thirst all the time, and almost passed out in a couple of meetings at work (TBF they were very boring meetings).

For many years I struggled, because I don't like to exercise — I fucking hate to exercise, honestly — and I like to eat what I like to eat. I don't have much of a sweet tooth, but a low-carb diet is out of the fucking question. I do try to eat less bread, less pasta, and less meat than I might if I was feeling super self-indulgent, and that's helped a little bit. Switching from Coke to Coke Zero, and from Snapple to unsweetened iced tea (Pure Leaf or Arizona) has helped, too. I was never a big drinker, so giving up alcohol immediately upon diagnosis (my first doctor told me it would interfere with my medication) was no sacrifice at all.

A couple of months ago I had a genuine breakthrough. I'd been taking 1000 mg of Metformin with breakfast and 20 units of injectable Toujeo insulin with dinner, and my numbers were OK but not great. So I asked my doctor if we could add 25 mg of Jardiance to that, and we did, and all of a sudden my numbers are normal to even below normal. When I test in the morning my glucose is in the 60-75 range, sometimes below that. As I said on another thread recently, it's gotten to the point where sometimes I need to eat carby garbage for dinner in order to make sure I don't wake up with the shaking sweats. But in general, I'm feeling pretty good and optimistic.

All very helpful, thank you.

i think the worst part is all the conflicting info online & bored doctors leaving you to your own devices

Big yes on both counts. As I said above, my doctor is useless.

Because I only want good news, I do my one self-reading a week at 9:30 in the evening, three hours after dinner. I know a morning reading will be higher, so I don't do one. Right now, because this is all new, I'm inordinately focused on these readings--I'm sure that will pass soon enough.

My eyesight has been as issue since grade 4; I hope this doesn't hasten bad stuff, but I was probably headed in that direction regardless.

I will ask my doctor about Jardiance, but I suspect I already know what the answer will be: "Let me look that up in my book."

re readings: it helped me not to think of them as an accusation (which i did for the longest time). this will sound corny but now i try to treat it as a compass? like, this reading is where you are ~right now~ and just make your course corrections accordingly. let it help you

sorry that sounds so dumb out loud

sounds like good thinking to me

it’s just, like i found my first 6 months so stressful bc of fluctuating readings, plus my blood pressure was high & i was struggling with those as well and it just felt like every test result & reading was just there to tell me i sucked

i couldn’t cope but the stress of that feeling was also helping to keep those readings out of whack

it’s so easy to drown in the microfocus & lose sight of the bigger picture. how you ARE getting better, you ARE making changes, you can just get up out of your chair & still live life regardless of whether your reading was high or low.

give yourself permission to fluctuate, to course correct, and to just try to do our goddamn best. that’s all we need to do.

Type 1 over here. Got diagnosed about 5 years ago, it sucks.

xp yes it's important to realise there is a very direct link between stress hormones and blood sugar level! That's one of their main immediate effects.

Went to the doctor on Wednesday; he actually wants me to get my numbers up a little (aiming for a morning glucose number around 90 rather than 60-75) so I've cut my dose of Toujeo in half, from 20 units to 10. Which means I no longer get to/have to eat cookies after dinner but I am waking up in the target range.

Good to hear. I'll be doing another three-month reading on Tuesday; my last one, my fourth, was down to 7.5 from 10.1. My home readings have levelled off in the ~5.5 range. I'll have to fight against complacency; I do find myself eating the occasional extra Keto cookie and such now that the initial panic has subsided. The one thing that's going great is weight loss; down to 164 this morning.

all encouraging news, good stuff!!

The one thing that's going great is weight loss; down to 164 this morning.

Nice! Once I got my medication dialed in properly, and made the accompanying mental adjustments, weight control was and has remained pretty easy. I've weighed roughly 175 (at 6'2") for 20+ years.

One thing I'm just becoming aware of--who even thinks about these things until you have to?--is the extra sugar in regular 2% milk. It's like all the fruit juice I've been guzzling the past 20 summers: "Isn't that great for my health that I don't drink pop?" As soon as I finish the milk I have on hand, I'll probably switch over to Joyya (knowing full well I'll over-pay for it).

my fourth A1c test today since March 2022 diagnoses (initial was 8 - and subsequent results were 6.1 and 6)

today I’m at 5.7 which was a welcome surprise

i expected it to higher but honestly i am still learning what does/doesn’t affect it, still a bit mystifying tbh

i thought maybe since I wasn’t able to exercise at all the past couple of months due to back problems that that might put me higher, plus christmas brought inevitable carbs that I couldn’t avoid & felt like my diet got a bit lazier

anyway, with these results it feels encouraging to finally get something like a win, and i am taking it as a sign to keep doing what i’m doing

will f/up w doc to see what they say

Good job. I was worried about Christmas too, but got through with good levels (5.3 - 5.5 at home; last three-month was 7.2 but before the holiday) and my weight's down to 162 some mornings, the lowest it's been in three decades. And I'm not as panicky about everything I eat now.

hi-five :D

the not-panicky about eating the wrong thing is huge, it’s like you want to go back & hug yourself for all freaking out you did, i can totally relate to that

Yeah, getting over food panic was a major step for me. I try to eat healthy but I refuse to eat joyless flavorless food just because it's theoretically better for me.

Perhaps it will help to consider a diabetes anti-role model: Lemmy. When he got diagnosed (which included spending a week in a coma), he took his pills, but other than that his only lifestyle change was switching from Jack Daniels & Coke to Jack Daniels & Diet Coke. I don't think he even gave up speed.

lmao <3 u Lemmy

As long as I can still shoot speed, I'm happy.

I feel like I haven't given up anything in terms of regular meals--or at least I'm loving everything I'm eating, and not thinking about the pizza/cheeseburgers I've given up. With snacks, I've given up a little. The Keto/Good Fats/Good Eats stuff I'm buying does lose a bit, but I've found one really good yogurt (Two Good vanilla) that tastes great and only has 3g of carbohydrates per 1/3 cup.

I've been eating a lot of Healthy Choice microwave dinners — they're meat and vegetables with maybe a little bit of pasta, with optional sauce/gravy that I almost always skip.

There a couple of those I like, and I always add extra vegetables. I cook lots of fish and chicken, and I found a Thai soup I really like.

Had my last two bi-weekly blood tests, won't go back for three months now. In view of how engaged my doctor is--not at all--I'll be on my own till the spring.

Readings are good: 6.7 then 6.5 for the three-month levels, 5.2 at home last night (lowest yet). Had my first cheeseburger in almost three months to celebrate, probably the worst thing I could do--but added chick peas to my nightly salad as penance.

lol yeah my doctors office called after my lab results came in & they’re like “yep everything looks stable ok bye”

last 3-month visit i waited in the exam room for 30 minutes for a pointless 5 min “keep doing what you’re doing” consultation

so i guess no visit at all is an improvement

My doctor's receptionist retired a couple of weeks ago, and she was an intermediary I had some rapport with. Typical: I didn't realize that when we'd been communicating via e-mail, it was her address, not the office's. ("I've just retired...please contact Dr. _______ at the office.) Wouldn't be shocked if my doctor doesn't even have an e-mail address attached to the office.

Buses cancelled where I was today, so a lot of absent students; it was pizza day, and there was extra for any teachers who wanted some. So I had my first pizza since getting the diagnosis in October. Plain cheese, two small slices--I was fine with that, though there was a little guilt about not limiting myself to one. I probably should have self-tested tonight to see if there was a spike, but it would have been nine hours later, so I doubt it would have shown up anyway. Plus I only like good news.

sometimes not knowing is more manageable than knowing & not being able to do anything abt it.

i had a work dinner last week at a thai restaurant. except the catch that i didn’t learn, that no one knew until we all got there, was that my boss was ordering for everyone! for 25 of us. unhinged. random dishes would get passed around unannounced so it was like a game of telephone trying to establish what any dishes were - not great for me but worse for ppl with serious food allergies

i just ate like 12 random scoops of various curry & like a teaspoon of rice …. and then made a protein bowl when i got home.

not ideal

if i could have ordered an actual dish for myself like i had expected, it would have been fine! grr

Yeah, I wasn't totally happy with the restaurant (pub, really) my sister chose for her birthday last night--the fish was good, but nothing in the way of vegetables except salad. But you don't want to end up being a drag when it's her night (what I ate was fine)...I've been eating this Thai soup once a week and the food-label numbers are really good.

Just to be clear, I wasn't ambushed like you; we both thought the mains were okay from the online menu, and I think just assumed there'd be a vegetable option on the side.

i had a work dinner last week at a thai restaurant. except the catch that i didn’t learn, that no one knew until we all got there, was that my boss was ordering for everyone! for 25 of us. unhinged. random dishes would get passed around unannounced so it was like a game of telephone trying to establish what any dishes were - not great for me but worse for ppl with serious food allergies

Ugh, this sounds like a nightmare. "Welcome to the mandatory meal! Here's your slice of cake!" "Uh, thanks...?"

yeah it was quite stressful

Well, the one thing I've learned over the last 20 years is that one bad meal won't kill you. There are definitely times when I've eaten really poorly and felt it (I remember once at work having a bowl of macaroni and cheese, with bread crumbs on top, for lunch and being basically in a coma for the rest of the afternoon) but I can always stabilize my system pretty well by the next day. I've even had days where my sugar spiked for no reason at all — I was eating healthy, getting an acceptable amount of exercise, and it just shot into the 300s for no reason at all, like my pancreas had just decided to take the day off. So, you know, do your best. It'll work out.

Which is actually something I've been wondering: if your level spikes and then returns to normal, is it like it never happened, or does every spike weaken your system a little more. (And I'm not even sure what I mean by "system.")

No question mark, but there is a question in there.

Based on my own experience, while diabetes does weaken your system over time, the process can be very gradual (like "river water wearing down a stone" gradual), especially if you are doing your best to be healthy. If you're disregarding the disease and eating pizza and snack cakes all day, drinking a lot, etc., etc., then sure, it'll progress faster than it otherwise might — that's just logical. But getting the right medication, eating as healthy as you can whenever you can, exercising (without even being a nut about it), all helps a surprising amount.

Mr. Jaq who has been trying to manage type 2 with oral meds for quite awhile (with occasional very long spates of denial and bursts of keto) is now on a small amount of insulin overnight. Hoping he takes it seriously and is consistent with it. Kudos to all y'all for dealing with it.

keto as an idea offers some useful recipes for me like when i am experimenting w desserts or baking or looking for a no carb option here or there but there is no way i’d ever go down that road as a whole lifestyle

rolling the dice on ketosis seems so scary to me & anecdotally v hard to achieve without encountering some p serious complications?

After a day of Peg-Lyte and more or less fasting--if you know what I mean, you'll know what I mean--had a reading of 4.9, first one under 5.0.

with occasional very long spates of denial--this is what I worry about most. With me it would be complacency, brought on by good readings like that one, more than denial.

Which is actually something I've been wondering: if your level spikes and then returns to normal, is it like it never happened, or does every spike weaken your system a little more. (And I'm not even sure what I mean by "system.")

― clemenza, Saturday, February 18, 2023 6:08 PM (three days ago) bookmarkflaglink

as a type 1, the thing the doctor checks these days (which they can now monitor) is 'time in range' and therefore it seems like the spikes don't matter as much? i'm guessing type 2 would be the same

I think 5.5-6.0 is the most realistic range I can expect; that's my goal, to keep it there.

yeah i think that is the sweet spot for me too

Going to the doctor tomorrow - not expecting much but shoveling snow has been keeping my fingerstick numbers low, anyway.

Yesterday my weight was under 200 lbs. for the first time in about 20 years, so I'm cautiously optimistic about my next numbers.

nice one!

I was told by my endo that anything up to 10 is fine, as long as its not constantly on that. I just tested mine mid-arvo after a lunch ft. potato salad and 2 weeks of frankly shite eating (I'm on holidays dammit) and... it was still 5.8!?
Only issue I'm having at the minute is I decided to try stopping the ozempic, and regrettably my appetite's come right back and I've put on 2kg fairly quickly so I *really* need to be more mindful. I have the tools now - hunger or no, I know what to eat and in what amounts so I dont think I need ozempic's pukearama to prop it up. Summer salads and more walking/swimming are on the cards now.

Good reading...One thing I noticed when I got that 8.4; I actually felt ashamed, like two years of real effort were out the window, and I didn't post here. Shame can actually be a pretty good motivator sometimes.

true! but i think we can also place too much personal burden on those high numbers & make ourselves feel ashamed for something that is ultimately a single dot point on a graph

be kind to yourself!
move forward, do the work but if you slip, it’s ok. keep your chin up

Exactly! Agreed.

At my first quarterly checkup with Trulicity in the mix, my A1C was down from 6.4 to 6.0, weight was down 10 lbs. Later that week, my insurance co (Cigna) celebrated this achievement by saying they wouldn't pay for the drug anymore. My doctor appealed and it was reversed -- I got a one-year prior authorization so theoretically I don't have to worry about this bullshit until Feb. 2026. But that took some time so my shot day moved from Sundays to Mondays. And then yesterday I forgot to take it so now it's Tuesdays. I've got to set a more reliable alert.

Spent the last 2 months off ozempic and my blood glucose snuck up slightly but also my weight shot up alarmingly. TBF that was also due to holiday-season indulgences (I had 5 weeks off over summer so there was a lot of additional booze, hot chips and so on). So I'm going back on the oze for a bit. Also not drinking any alcohol for Feb (aside from one session last week for a friend's bday).
Got an A1C test this week so it'll be interesting to see if its nudged up.

That's good news x 3, WmC; good luck, Trayce.

My doctor has assigned me to stick a continuous glucose monitor on my arm for 10 days, so I started it this morning. I didn't want to download an app for my phone so now I have a tiny monitoring device that I need to keep within 20 feet of the sensor at all times, which I guess means carrying it around in my pocket.

Good three-month reading: 5.9. Included in this window was the one 8.4 reading at home (just before Christmas) that alarmed me a bit. So I take it that that really was a blip, triggered by something specific that day. My three-months (sometimes four...) going back to March 2023 are 5.7/5.7/5.8/5.9/5.8/5.9, with a decent amount of cheating therein.

3 month average result: 5.7, which is great - first time i’ve come down from 5.9 since this time last year

i havent been doing the fingerstick tests at home for a couple of months. i figure if the A1C number is still this side of 6 i dont need to be quite as obsessive as I used to be

Wow, that's great. I cut back to home testing every three weeks once my three-months locked in. As always, though, nervous about the next one in a week or two.

i’m the same way, always get super nervous! i was having stress-dreams that my A1C was going to be super high :/

i can tell myself i’m doing the right things but my subconscious still loves to beat me up i guess idk

My doctor has asked me to go back to having a 24 hour glucose monitor stuck to my arm. I'll probably start that next week, on May 1. I'm not seeing him again until July so I'll give him a month's worth of data when I go in.

My A1C has been so consistently 5-5.5 since I started meds that I'm considering reducing the dosage of my medications. I'm not even that careful with my diet anymore (which has nudged me up a few kg heh).
I think I'm one of those lucky ppl who got type2 identified quickly enough and then did the rapid weight loss well enough that I mightve gone into remission?

Quarterly checkup this coming Monday...weight is holding steady, down 3-4 lbs. maybe, so I'm cautiously optimistic that my numbers will be good. I have a glucometer around here somewhere, but don't use it — quarterly testing has been enough. I won't tell my doctor about the coconut cake earlier today if you won't.

A1C of 6.0 for the third quarter in a row. I guess I've gotten very good at estimating how much food crime I can get away with.

nice one! i’m pretty much the same boat.

A1C crept up to 6.1 this time… I’d been cheating a LOT more than usual this past few months so i kinda expected it. Lesson learned

Onward! …

Last one I took at home was Aug. 20 (6.3); my three-month on Sept. 11 was 6.1. I'm due...also cheating quite a bit.

hail we cheaters

Today I finally recognized the reference in the thread title, lol.

My A1Cs have been ok but the other day I did a prick test 2 hours after a meal and mine was 14, yike. It should have gone down. But, I've spent the last week eating a lot of naughty stuff as my mum visited and we were in a 5 star hotel and no way am I saying no to the 5 star hotel breakfast buffet!

First home test in two months: 6.7. I'm blaming the upward tick on baseball-related stress, not on the danishes and french fries and bacon-and-egg breakfasts that don't seem to terrify me like they did three years ago (and maybe should again).

<3

FIVE POINT FIVE, BITCHEZ

!!!!

whoa way to go WmC!

Biggest quarterly drop ever. I knew it was going to be good because I'd dropped another ~8 pounds this quarter. I dropped a quick 15 when I started on the shot then plateau'd for about 9 months, then started dropping more the past couple of months, even with a couple of Chinese buffet crimes and some ice cream. If the local donut shop had been open today I would have gone straight there for an apple fritter after my checkup.

Wow, WmC. I figure I'll be up to 20 after the WS.

lol

Did a home reading last night, first in three weeks, and it was 7.6. That was my first over-7.0 since Christmas. This didn't make any sense to me. I've been cheating, for sure, but I've been cheating for two years; there's been some job-related (and, yes, baseball-related) stress, but still seemed weird. I wasn't panicked or anything, but it bothered me enough that I took another reading tonight, and this time it was back to 6.5--not great, but more normal. So I don't know, maybe just a blip. I did accidentally prick my thumb last night, and I never use either thumb. Not sure if that would effect anything...random blip makes more sense.

(low whisper) affect, not effect...

maybe do a couple of weekly readings just to make sure you’re not trending too far up? but seems more blip-like for sure. chin up!

For the next month, good idea.

I always wonder if the Metformin will start to have less effect over time.

yeah i worry abt that too

(Physiologically, it shouldn't!)

My doctor's had me stick a continuous glucose monitor on my arm for the last several months, and weirdly it's made me much more chill about my numbers. Yes, I ate a big hamburger and fries for lunch - number gonna go up. Oh, I haven't eaten anything in 14 hours - number gonna be down. Whatever, on we go.

What to make of this? Since that 6.5 above:

Nov. 16 - 6.0
Nov. 23 - 9.8 (highest reading since initial diagnosis three-plus years ago)
Nov. 25 - 8.4
Nov. 28 - 6.4
Dec. 2 - 5.6 (lowest reading since February)

I was bothered enough by the 9.8 that I tested two days later; after the 8.4, I decided that another reading that high and I'd see the doctor. Didn't happen.

In explaining the 9.8, I'll put it down to two things: 1) a trivia event the night before, where you sit there for three hours and continually snack on the food that people brought; mostly okay things, but not all of it (e.g., a fruit tray, but dunking in chocolate dip); 2) something I need to pay more attention to, sleep--had a couple of nights the week before where I sat there like an idiot playing online Scrabble and backgammon till 3:00 in the morning.

I find the subsequent drop as puzzling as the 9.8. I've been more conscientious, but hardly expected anything so quick or pronounced.

Whatever--pretty close to that mindset.

My fasting fingerprick tests have consistently been around 7-7.5, but I've also been massively stressed, and apparently that can mess up the numbers?

Oh and I'm eating like shit, too. Ha.

From everything I've read, stress is definitely a factor, so maybe I'd take that as good news, something that's artificially (in a sense) inflating your numbers.

Yeah, stress means increased cortisol + lack of sleep + eating hot chips and other shit, so yeah it makes sense. Grief stress is a really weird thing on the body :/

Welp my taking the piss when it comes to my diet seems to have caught up with me recently. I've started to get severe dry eye again, which is something I had pre-diagnosis that'd almost completely cleared up after I got it all managed. I'm taking my meds consistently but the combo of stress, ill health and eating a lot of hot chips and white bread means I'm out of whack. Fasting prick tests of 7.5, post-meal blowouts of 11. I gave myself leeway because of dad dying but I think its time I straighten up, at least on the carbs!

I'm with you...I thought that 5.6 last week had me back on track till I tested 7.7 two days ago. I'm like a ping-pong ball the past few weeks--puzzling.