In the school cafeteria, teachers put ice in 5-year-old Ashlyn's chili. If her lunch is scalding hot, she'll gulp it down anyway.
On the playground, a teacher's aide watches Ashlyn from within 15 feet, keeping her off the jungle gym and giving chase when she runs. If she takes a hard fall, Ashlyn won't cry.
Ashlyn is among a tiny number of people in the world known to have congenital insensitivity to pain with anhidrosis, or CIPA -- a rare genetic disorder that makes her unable to feel pain.
"Some people would say that's a good thing. But no, it's not," says Tara Blocker, Ashlyn's mother. "Pain's there for a reason. It lets your body know something's wrong and it needs to be fixed. I'd give anything for her to feel pain."
The untreatable disease also makes Ashlyn incapable of sensing extreme temperatures -- hot or cold -- disabling her body's ability to cool itself by sweating. Otherwise, her senses are normal.
Ashlyn can feel the texture of nickels and dimes she sorts into piles on her bedroom floor, the heft of the pink backpack she totes to school and the embrace of a hug. She feels hunger cravings for her favorite after-school snack, pickles and strawberry milk.
That's because the genetic mutation that causes CIPA only disrupts the development of the small nerve fibers that carry sensations of pain, heat and cold to the brain.
sad or... kind of cool?
― m. (mitchlnw), Monday, 1 November 2004 13:38 (twenty-one years ago)
― Andrew Blood Thames (Andrew Thames), Monday, 1 November 2004 13:42 (twenty-one years ago)
― Kevin Gilchrist (Mr Fusion), Monday, 1 November 2004 13:43 (twenty-one years ago)
Can she feel other sensations, incidentally? Would tickling her do anything, for example, or is she completely numb?
― Matt DC (Matt DC), Monday, 1 November 2004 13:45 (twenty-one years ago)
― lukey (Lukey G), Monday, 1 November 2004 13:46 (twenty-one years ago)
Shit condition to be in.
― Rumpy Pumpkin (rumpypumpkin), Monday, 1 November 2004 13:49 (twenty-one years ago)
― Jarlr'mai (jarlrmai), Monday, 1 November 2004 13:49 (twenty-one years ago)
― PinXorchiXoR (Pinkpanther), Monday, 1 November 2004 14:00 (twenty-one years ago)
― Markelby (Mark C), Monday, 1 November 2004 14:04 (twenty-one years ago)
― Kevin Gilchrist (Mr Fusion), Monday, 1 November 2004 14:11 (twenty-one years ago)
I'm thinking that this is really an updated version of that "Small Wonder" robot.
It's sad, I guess, but look at her face. It's the look of a little girl who has never felt pain. Doesn't even know what it feels like. THERE CAN ONLY BE ONE.
― Pleasant Plains (Pleasant Plains), Monday, 1 November 2004 18:39 (twenty-one years ago)
― jaymc (jaymc), Monday, 1 November 2004 18:53 (twenty-one years ago)
OTM.
― Jordan (Jordan), Monday, 1 November 2004 18:55 (twenty-one years ago)
― """""calum""""", Monday, 1 November 2004 18:58 (twenty-one years ago)
― ailsa (ailsa), Monday, 1 November 2004 19:05 (twenty-one years ago)
I guess that her parents will have to find other ways to discipline her besides spanking. (And no, this is not a response to calum's post either.)
― Pleasant Plains (Pleasant Plains), Monday, 1 November 2004 19:09 (twenty-one years ago)
but does she feel pleasure?
― kelsey (kelstarry), Monday, 1 November 2004 19:13 (twenty-one years ago)
― Tuomas (Tuomas), Monday, 1 November 2004 19:26 (twenty-one years ago)
― Huk-L, Monday, 1 November 2004 19:39 (twenty-one years ago)
And what happens if they "cure" her in ten years? Imagine going all of your life without pain and suddenly being able to feel it one day.
Ouch.
― Pleasant Plains (Pleasant Plains), Monday, 1 November 2004 19:43 (twenty-one years ago)
― dave225 (Dave225), Monday, 1 November 2004 19:45 (twenty-one years ago)
― Pleasant Plains (Pleasant Plains), Monday, 1 November 2004 19:53 (twenty-one years ago)
― Allyzay Science Explosion (allyzay), Monday, 1 November 2004 20:38 (twenty-one years ago)
― dave225 (Dave225), Monday, 1 November 2004 20:41 (twenty-one years ago)