has anyone here got celiac disease?
― Latham Green, Thursday, 14 June 2007 17:05 (eighteen years ago)
No, thanks for asking -- at least not yet. But I'll revive this to note that my mom's now been diagnosed -- though this is a good thing, since it means we've finally tracked down what's been causing her migraines and generally unwell feeling for a couple of years now, maybe more. (Since the diagnosis, she's switched to a gluten-free diet and while the adjustment hasn't been entirely easy, she's felt fantastic for some weeks now where in the past she would suffer regular attacks.)
Apparently it's inherited. Joy.
― Ned Raggett, Friday, 21 March 2008 01:44 (seventeen years ago)
My wife believes that she has it, but she hasn't been formally diagnosed.
― libcrypt, Friday, 21 March 2008 01:52 (seventeen years ago)
Whups, I'm wrong. She has been diagnosed with it.
― libcrypt, Friday, 21 March 2008 01:55 (seventeen years ago)
The one minute diagnosis!
― Ned Raggett, Friday, 21 March 2008 01:55 (seventeen years ago)
A quote from her: "I think that people have those things are crazy", but I guess a blood test and skin biopsy confirmed it.
― libcrypt, Friday, 21 March 2008 01:56 (seventeen years ago)
It does all seem cryptic -- in my mom's case, it wasn't specifically looked for, rather tested as part of a number of things. But hey, at least we all know now.
― Ned Raggett, Friday, 21 March 2008 01:59 (seventeen years ago)
My wife's symptoms include spotty skin rashes, which she's had since a teenager, at least. She just got fed up enough to get a biopsy last year, and I guess that's it. The only change I really notice is that I need to buy rice pasta along with wheat. I've always been the only bread and cereal consumer in our home.
― libcrypt, Friday, 21 March 2008 02:01 (seventeen years ago)
Handy, that!
― Ned Raggett, Friday, 21 March 2008 02:06 (seventeen years ago)
My husband has it, and we've (well, mostly him, I tag along) become sort of activists... reaching out to the newly diagnosed and educating them, organizing events, etc. If you have any questions, I'd be happy to answer, and also, the NYC and Jersey City Celiac meetup groups have tons of info.
― miryam, Friday, 21 March 2008 17:31 (seventeen years ago)
bizzare celiac/religion connection
Roman Catholic doctrine states that for a valid Eucharist the bread must be made from wheat. In 2002, the Congregation for the Doctrine of the Faith approved German-made low-gluten hosts, which meet all of the Catholic Church's requirements, for use in Italy; although not entirely gluten-free, they were also approved by the Italian Celiac Association.[66] Some Catholic coeliac sufferers have requested permission to use rice wafers; such petitions have always been denied.[67] The issue is more complex for priests. Though a Catholic (lay or ordained) receiving under either form is considered to have received Christ "whole and entire", the priest, who is acting in persona Christi, is required to receive under both species when offering Mass — not for the validity of his Communion, but for the fullness of the sacrifice of the Mass. On August 22, 1994, the Congregation for the Doctrine of the Faith apparently barred coeliacs from ordination, stating, "Given the centrality of the celebration of the Eucharist in the life of the priest, candidates for the priesthood who are affected by coeliac disease or suffer from alcoholism or similar conditions may not be admitted to holy orders." After considerable debate, the congregation softened the ruling on 24 July 2003 to "Given the centrality of the celebration of the Eucharist in the life of a priest, one must proceed with great caution before admitting to Holy Orders those candidates unable to ingest gluten or alcohol without serious harm."[68]
As of January 2004, an extremely low-gluten host became available in the United States. The Benedictine Sisters of Perpetual Adoration in Clyde, MO, after ten years of perseverance, trial, and error, have produced a low-gluten host safe for celiacs and also approved by the Catholic Church for use at Mass. Each host is made and packaged in a dedicated wheat-free / gluten-free environment. The hosts are made separately by hand, unlike the common host which is stamped out of a long thin sheet of bread by a cutter. Therefore, each host is a slightly different size and shape. Most importantly, the finished hosts have been analyzed for gluten content. The gluten content of these hosts is reported as 0.01 %. In actuality, the gluten content is probably less than 0.01%. Sister Lynn, OSB, said that the result of the analysis of the finished host revealed "no gluten detected". The hosts are labeled as 0.01 % since the lowest limit of detection of this analysis was 0.01 %. In an article from the Catholic Review (February 15, 2004) Dr. Alessio Fasano was quoted as declaring these hosts "perfectly safe for celiac sufferers."
― gershy, Friday, 21 March 2008 17:47 (seventeen years ago)
low-gluten jesus
Tom Waits' next album title.
― Ned Raggett, Friday, 21 March 2008 17:59 (seventeen years ago)
duet with Scarjo on "High Lactose Madonna"
― gershy, Friday, 21 March 2008 18:04 (seventeen years ago)
Wouldn't it be lactose-intolerant Madonna? I mean, notions of high-lactose Madonna are more apro for like stories.xxnx.com than a family chat board like ILX innit?
― libcrypt, Friday, 21 March 2008 18:49 (seventeen years ago)
comments.stories.xnxx.com
― gershy, Friday, 21 March 2008 18:54 (seventeen years ago)
Sorry got 'n' in wrong place hope nobody was disappointed.
― libcrypt, Friday, 21 March 2008 18:55 (seventeen years ago)
Can celiacs eat oats? Wife seems not to know.
― libcrypt, Saturday, 22 March 2008 04:59 (seventeen years ago)
The oat thing is debated for people with celiac disease... Regular oats, as in oat cereals, and the normal store brand oatmeals and stuff are always cross-contaminated with wheat. Oats themselves contain no gluten- cross-contamination is the issue. There have been a bunch of gluten-free oats made available recently, specifically by Bob's Red Mill, where different processing techniques are used. Some people eat these oats with no adverse effect, but my husband is very sensitive and won't try them. With celiac disease, sometimes it's trial and error to see what affects you and what doesn't.
― miryam, Saturday, 22 March 2008 06:09 (seventeen years ago)
Thanks, this is all good to know...might suggest it to my mom. But she's rapidly hitting high gear in the self-education process.
― Ned Raggett, Saturday, 22 March 2008 06:49 (seventeen years ago)
m, does yr husband ever eat these?
http://img132.imageshack.us/img132/2969/imageuploadimagehi7.jpg
They say "wheat-free", but who knows if there's cross-contamination?
― libcrypt, Saturday, 22 March 2008 19:08 (seventeen years ago)
oh, so that's what nairn is doing these days. kudos!
― gershy, Saturday, 22 March 2008 19:25 (seventeen years ago)
What did nairn used to do?
― libcrypt, Saturday, 22 March 2008 19:54 (seventeen years ago)
BLASPHEMY, SPLEEN, VIOLENT IMPULSES: The A. Nairn Appreciation Thread
― gershy, Saturday, 22 March 2008 21:45 (seventeen years ago)
Sorry I didn't answer any questions here, I was away for a bit. libcrypt, I'm not sure what that is, I don't think we get it in the NYC area. From the looks of it, it's made only of oats and is wheat free, but there's no guarantee that the oats weren't cross-contaminated or that it wasn't produced on the same machinery as wheat. Another thing to look out for is stuff fried in the same oil as battered stuff...
― miryam, Sunday, 30 March 2008 18:01 (seventeen years ago)
I'm not sure that my wife's celiac disease is quite as severe as other folks'. She had pancakes on her recent trip to Cancun, and she said that they just made her feel a bit bad, nothing too terrible. She gets rashes sometimes, but it's really quite minimal.
― libcrypt, Monday, 31 March 2008 04:57 (seventeen years ago)
You should have your mom talk to my youngest brother. He's like BONKERS about ceiac advocacy and sticking up for celiacs and trying to empower them. He made a celiac friend at Idaho type I diabetes Camp Hodia, and tells basically anyone who will listen all about celiac disease. "I HAVE CELIAC SYMPATHY," he's always saying. Coolest kid evah.
― Abbott, Tuesday, 1 April 2008 00:07 (seventeen years ago)
As far as I know, even if someone doesn't have physical pain after eating something with wheat, the damage is still being done to their intestines. It's best to be careful, really.
Very cool about your bro, Abbott!
― miryam, Tuesday, 1 April 2008 00:15 (seventeen years ago)
Celiac tat!
http://carlzimmer.typepad.com/photos/uncategorized/2008/02/16/celiac.jpg
Jessica Pikul writes: I am a Chemistry PhD student at University of Washington. My research is in bioinorganic chemistry, specifically modeling non-heme iron-sulfur metalloenzymes. I am also a Celiac (autoimmune disorder triggered by ingesting gluten). The tattoo on my leg is one of the segments of the gluten protein that I can not digest. The ball and stick molecule is of a Proline-Serine-Glutamine-Glutamine peptide that I can't break down which then stimulates T-cells to start the fun chain reaction that ends in my small intestine villi being attacked by antibodies. The background to the molecule is an artsy spacescape. I chose this to speak to the universality of the physical laws that govern the microscopic and macroscopic, an idea that has kept me excited about chemistry and in the lab to this day (and hopefully longer).
― Abbott, Tuesday, 1 April 2008 00:23 (seventeen years ago)
Ms. T is celiac and a follower of /r/Celiac. Today's big post was "What’s the most ridiculous way you got glutened?" and the top-voted post was too funny to not share.
wickedfreaaakintuna - 1d agoHonestly this is so funny and traumatizing I have to share.Grew up in a very Italian Catholic household, went to Catholic school my whole life. So you can imagine that I went to Mass frequently.I didn't know I had Celiac until I was 24, and I vividly remember on Christmas one year we went to three masses in one day....so HELLA Eucharists were consumed. I was probably 14, 15? I just remember projectile vomiting in the middle of midnight Mass and my senile ass DEMENTIA PATIENT great great aunt who was like 103 at the time started screaming "SHE IS THE DEVIL" and went into her dementia fit and it was a whole thing
Grew up in a very Italian Catholic household, went to Catholic school my whole life. So you can imagine that I went to Mass frequently.
I didn't know I had Celiac until I was 24, and I vividly remember on Christmas one year we went to three masses in one day....so HELLA Eucharists were consumed. I was probably 14, 15? I just remember projectile vomiting in the middle of midnight Mass and my senile ass DEMENTIA PATIENT great great aunt who was like 103 at the time started screaming "SHE IS THE DEVIL" and went into her dementia fit and it was a whole thing
― Elvis Telecom, Monday, 24 June 2024 08:18 (one year ago)