Would *you* want to create a deaf baby?

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Hmm.

Ned Raggett, Monday, 8 April 2002 00:00 (twenty-three years ago)

Personally, given that the kid has no say in the matter, I have problems with this.

Ned Raggett, Monday, 8 April 2002 00:00 (twenty-three years ago)

It has its advantages.

Tanya, Monday, 8 April 2002 00:00 (twenty-three years ago)

'But you know, black people have harder lives. Why shouldn't people be able to go ahead and pick a black donor if that's what they want?'

this is possibly the stupidest comparison i have ever seen in my entire life.

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

I think that their next baby should spontaneously generate razor- sharp incisors, preferably while breast-feeding.

Designer baby = bad news (unless of course it's a Gucci baby).

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

Indeed. Black people have harder lives primarily because of current discrimination and the historical effects of prior discrimination. Deaf people suffer from these things too but basically deaf people have harder lives because they cannot hear things.

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

(This incidentally is also why the X-Men completely sucks as an allegory of racism)

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

Tom, I was right there with you up until your second post.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

Point of anti-racism: people of one race are not fundamentally different from people of another race so you shouldn't treat them as if they are.

Point of X-men: people of one race are fundamentally different from people of another race so you should treat them as if they aren't. Um...

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

basically deaf people have harder lives

This is where the people involved flatly disagree with you (everyone else) though, so there's no argument. I have to say I really don't have a problem with what they did. I haven't given it much thought though.

Alan at school, Monday, 8 April 2002 00:00 (twenty-three years ago)

Well if their argument is the deaf people don't have harder lives why are they invoking the "harder lives" argument re. black people? I'm not saying their decision is wrong, just that their reasoning seems odd.

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

Point of X-men: people of one race are fundamentally different from people of another race so you should treat them as if they aren't. Um...

But that's not the point of X-Men! The point of X-Men is that even though they were born with odd powers/limbs/skin colors/digestive tracts/etc, the mutants are fundamentally the same as humans. They have the same feelings, emotions, desires, hopes, fears, cultural basis, etc. Grant Morrison has, I admit, changed this point somewhat, largely because no one after Claremont seemed capable of creating a decent story themed on this, but the core concept is that even though the biology of the mutants is off-kilter from the non-mutants, they're still human and should be treated as such.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

I thought the point of X-Men was that mutants and humans were, like, actually different species? One was home sapiens, the other was homo sapiens superior? Or has this been ret-conned?

I think X-Men is perfectly good as an allegory of pragmatic tolerance in general, just as an allegory specifically of racism it falls down for me.

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

tom is right dan, depending on which crap science the writer is following the x-men are either MUTANTS or alternately they are 'homo superior' which implies being not even the same SPECIES as humans, it's like if you made an modern civil rights allegory about how dogs and cats can't get car loans or tables in restaurants .

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

oh okay both of you posted before i could.

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

point behind my new dogs & cats civil rights allegorical masterpiece: although they were born with odd hair/speech/ limbs/skin colors/digestive tracts/etc, the dogs and cats are fundamentally the same as humans and have the same feelings, emotions, desires, hopes, fears, cultural basis (most live in houses!), etc and should therefore be accepted and treated the same as humans!

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

The wider question here isn't really about reproductive rights per se, it's about parenting, i.e what rights do parents have to want/ensure that a child is like them? If we grant (as these ppl say) that deafness is a cultural identity then the problem is whether parents have the right to impose a cultural identity on their children, and this question shifts from being grouped with questions about gender-choice to questions about arranged marriages or dynastic ambitions.

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

The X-Men confusion has come about due to crap science/writing. Humans are homo sapiens sapiens while mutants are homo sapiens superior. They aren't different species; they're different breeds. The entire way that the series was set up SCREAMS racial allegory in the most unsubtle way possible.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

Ethan: Unless the world has gotten significantly odd, a human man and woman are not going to produce cat or dog offspring.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

yes i am more worried that this child is being brought up by the unable-to-reason than that its enjoyment of life will be impaired by not hearing, which to be honest i do not see as necessarily so

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

if you use the x-men as mutants instead of this other species crap you could actually relate it to this story here since hereditary deafness could be considered a mutated trait. i mean i'm not for creating a master race or anything here but christ, don't humans have enough problems already without people trying to fuck it up? bullshit dystopian sci-fi of the gattaca/brave new world-type was always utterly unbelievable to me because while ethan (h.) and uma look perfect-y they are MILLIONARE MODEL- ACTORS and the average american is on eight kinds of medication and sixty pounds overweight.

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

dan: unless the world has gotten significantly odd, a human man and woman are not going to produce an offspring that can teleport or shoot energy bursts from his or her fingers.

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

Going back to the original question: I am going to do my damnedest to create a def baby. Word.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

Clearly the X-Men was set up as a racial allegory but the quesiton is whether it works and is a good one. I think it isn't for loads of reasons but maybe this is a question for another thread.

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

THE DEAF BABY IS RAISING TOO MANY INTERESTING QUESTIONS

ethan, Monday, 8 April 2002 00:00 (twenty-three years ago)

Other questions the deaf baby is raising:

To what extent can cultural identity be physically determined? Do cultural identities exist beyond the opposition or prejudice against them? Is successful allegory possible within a serial form? Who would win in a fight between Banshee and the Deaf Baby?

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

no need to shout ethan we're not radioactive

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

But Ethan, unless I've missed something, there aren't any people out there now who can teleport or shoot energy beams from their fingertips. There are cats and dogs out there, though, and there are people who insist on treating them like human beings (and in many cases, better than human beings; how many people will feed a homeless person as opposed to a stray dog?).

Tom: The interesting thing about this is that the whole mutant discrimination = racial discrimination works or falls apart depending both on how you identify "race" and how you identify "mutant". In 20 years of reading X-Men, it never occurred to me to think of the mutants as a different race, even when the writers had various characters come out and say mutants and humans were different races. And, even when I do think of mutants as being a different race from humans, the cultural similarities outwiegh the biological differences in my mind.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

different species = they cannot mate and have viable offspring
different race = nothing, biologically speaking (genetic variation within races = greater than genetic variation between races)

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

I realize now that in my last post, I used the word "race" when I meant "species". I blame "racism".

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

do the x-men evah have sex?

(i am not asking in ref to the issues raised on this thread, just ordinary unfettered cultural pervertalism)

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

There are other ways in which it falls down, not least that a certain amount of fear about people with incredible power is surely justified c.f. our anxieties about people getting hold of large quantities of weaponry. As an allegory it doesn't work either, though. Prejudice is based in difference yes but it then works through the ways that difference is described and articulated in physical terms.

In the real world black people have been hated/loved/feared/admired/imitated 'because' they supposedly possess simian features/inferior brains/enormous cocks/natural rhythm/incredible athleticism/etc. In the Marvel Universe mutants are hated because they can read your mind/blow things up/fly/lift buildings/etc. The key distinction is that all of the 'black' traits are also found in 'non-blacks' and with the same frequency, whereas very very few of the 'mutant' traits are found in 'non-mutants'. So that's where the allegory breaks down.

The delivery of the allegory then falls down in the fact that 99% of the mutants Marvel shows us *can* do these things and the ones who don't fit the stereotypes are more alluded to than shown. So the real world equivalent would be an anti-racist book or film populated almost entirely by ludicrous Mandingo stereotypes.

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

That said the allegory works when dealing with the ways prejudice is rooted in expectation - "I fear that black man because he might mug me" does map onto "I fear that mutant because he might throw a car at me". (Even then the fear is somewhat more justified if you are aware the mutant has the ability to throw a car, just as fear of mugging is somewhat more justified if you are aware that a guy you see regardless of race is carrying a knife or gun.)

And the allegory works best when comparing the reactions to mutants to those to other Marvel superheroes (except Spider-man!)

Tom, Monday, 8 April 2002 00:00 (twenty-three years ago)

Other bit of piss-poor reasoning: if deafness is a "cultural identity" then the child need not actually be deaf to be introduced to said "cultural identity," the whole point of culture being that it is non-genetic. On some level it seems as if they are just frightened by the thought of raising a child with access to a part of the world that is closed off from them. (This brings us around to the X-Men again, actually.) Also it indicates a profound and really unattractive lack of trust in the idea that the hearing are capable of respecting the deaf, plus in the end it is just despicably selfish to deliberately deprive anyone of 1/5 (or more) of the information in the universe just so they're more like you.

Nitsuh, Monday, 8 April 2002 00:00 (twenty-three years ago)

Actually a simpler way of looking at what they're doing is that they're just screaming "SOUR GRAPES" on the whole hearing-stuff issue.

Burning question: are they going to command the child to be homosexual as well?

Nitsuh, Monday, 8 April 2002 00:00 (twenty-three years ago)

isn't the crux of the madness their simultaneous rejection of what's a "natural" process for having babies (in just about every way imaginable) but also DEMANDING a natural childbirth, with their own DNA etc? why not just ADOPT a deaf baby that someone else didn't want you DOLTS.

Tracer hand, Monday, 8 April 2002 00:00 (twenty-three years ago)

there is little danger surely that this child is going to entirely trust its parents? (but i think this is only a version of how a lot of parents behave — cf xtian scientists re blood transfusions — which is amplified by its technological novelty)

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

but nitsuh it's only sour grapes if you believe they secretly want to hear... they are announcing, are they not, that thery are quite happy as they are and that is therefore possible to BE happy as they are?: ie that it *is* equal but different, they don't feel like "the hearing only without hearing", etc

they are also gambling on being able to persuade the child of this, which is quite another issue

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

I heart Tracer.

Tom, your point on the difference between how people react to mutants as opposed to the rest of the Marvel Universe is an excellent one and should have been the jumping off point of most of the X-Men mythos of the past 12 years. Unfortunately, Marvel editorial decided that its books were too closely interwoven and put everyone in their own seperate-but-equal box to make writing the stories easier. I think that this accounts for about 80% of the story stagnation that occured in the X-books in the 90s; they had this great foundation for stories but no effective way to leverage it.

Dan Perry, Monday, 8 April 2002 00:00 (twenty-three years ago)

True, Mark, there's some sloppiness in that characterization. I suppose I meant "sour grapes" in an only tangentially Aesoppy way, i.e. (a) they cannot hear things, (b) they don't see this as negative, on-balance, thus (c) on some level aren't they telling themselves that there's nothing worth hearing -- BUT obviously their argument would be that not-hearing has made them a part of a non- hearing "culture" or "experience" that they cherish and want to share with the child, which brings us back to the issue of whether you actually have to be deaf to take part in that culture. (Besides, if the kid were blind as well then it would have a special connection to the deaf-blind community but they don't see missing that as an issue.) Point being they are basically being like deaf-nationalists insofar as they reject the idea of raising a hearing kid who would both (a) hear, and (b) by virtue of being raised by them also have great understanding of and involvement in the "culture" of the deaf. But really still I detect some weird fear that a hearing kid would "reject" them or their "culture," which (a) depriving the kid of one sense in order to prevent this is cruel, and (b) having a kid involves the risk that they won't be like you, period. They reject your culture or your religion or your politics or other things besides, and this is what makes them different from pets.

Nitsuh, Monday, 8 April 2002 00:00 (twenty-three years ago)

(for a while there was a spider in my house that came and watched tv with me: if it was music, s/he would dance)

mark s, Monday, 8 April 2002 00:00 (twenty-three years ago)

mark s try and remember closely. was your spider ever dancing to Grand Funk Railroad? if yes then that spider was your CHILDE!!

Tracer hand, Monday, 8 April 2002 00:00 (twenty-three years ago)

why not just ADOPT a deaf baby that someone else didn't want you DOLTS.

tracer hand is as otm as an atm.

fritz, Monday, 8 April 2002 00:00 (twenty-three years ago)

Designer baby = bad news (unless of course it's a Gucci baby).
I can see the talk on the playground. "Oh you're so passe". (har har NOT)

nathalie, Monday, 8 April 2002 00:00 (twenty-three years ago)

hearing of the reaction to these people choosing to have a deaf baby, including ned's reaction, makes me SO ANGRY.
it makes me so angry that i will find it hard to be helpful here and will probably just rant
okay firstly has anyone read "the mask of benevolence" by harlan lane (just for starters?). if not and especially ned i recommend you take a look at it.
i am not Deaf. this is the only reason i would prefer to have a non- deaf child. actually, it's not my preference at all, i would like just as much to have a deaf child but i feel they would be better off with Deaf parent(s). Being Deaf from birth does not have to be a bad thing - the problems (/abuse) arise from surrounding people/cultures priveleging speech/hearing as the right and/or best mode of communication. Whereas sign languages have advantages and so on. If I had a Deaf baby (i think about this possibility quite often) i would make as much effort as i could to get it as involved as possible in Deaf communities. this i would guess would be painful for me as since no sign languages are my first language (and i would make sure that the sign language of wherever i was bringing the child up was their first language) then i guess i would be more separate from my child. But definately i'd be willing to accept this. Imagine how much you'd learn. (i feel a bit guilty now not knowing or trying to learn my local sign language).

most Deaf people say they are happy to have been born Deaf and it's good when they have Deaf children. It's society that has to change (errr...excuse that cliche sorry, it's late and this "issue" cuts so deep with me). Did anyone else see that documentary from about 2000 about the related families where some parents were Deaf and had Deaf kids and the hearing grandparents were upset when their next baby was born Deaf but the parents were pleased. They were investigating cochlear implants for their little girl. I am very much against cochlear implants for Deaf (as opposed to hairing-impaired or deaf later in life) people especially children, and babies! It's abusive. The people who condone and profit from that and things like speech therapy and so on are the ones people should be angry at (and do something about), not people who choose to have Deaf babies. come on, please please is there really this piss-poor level of awareness of the (continuing) history of abuse/discrimination against the Deaf amongst people on ILE, or are people just not posting?

elizabeth anne marjorie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

i think it's more the fact that they engineered the baby, rather than hostility to deaf people... i'm with what Tracer said, if these people are so intent on having a deaf baby and bringing one up, then why not just adopt one and rescue a child from all the things that Elizabeth Anne Marjorie is getting so het up about?

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

why not adopt one? But you could say this to anyone who wants kids.

Alan Trewartha, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

I'm more aware of it for thinking about it a lot yesterday, but I still think the crux of the matter is nothing to do with deafness, it's to do with whether or not it's ethical for parents to want a child who is like them.

Also - and I'm not asking this to be inflammatory, I don't know much about deafness issues - it's not just a question of verbal communications and language differences, is it? Most animals, including all the higher primates, receive a vast amount of non- verbal information aurally, generally to warn them of danger or alert them to opportunities. 'Society' has actually reduced this reliance on hearing non-verbal cues, but not eliminated it entirely I'd have thought.

To reduce the question to its most basic: assuming you could choose to create either a deaf baby or a hearing baby, what advantages (from the p.o.v. of the baby) would a deaf baby have, and what advantages would a hearing baby have? I can't currently think of any advantages to being deaf - this might be prejudice and if so I'd like you to help me break it down.

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

But most people don't set out to genetically engineer children?

Nicole, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Sorry, my post was in response Alan...

Nicole, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

imagine if they didn't go to all the trouble with the sperm donor. the baby is born with hearing... so they damage the baby's eardrums (let's just say it's a totally painless procedure) to make it deaf. would that be ok? how is doing the damage via genes different?

minna, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Richard Dawkins' theory of "evolution = common sense"

EH?

RickyT, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

I don't think I'm being very articulate on this matter anyway.

Nicole, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Alan, it's not a case of optimising advantage, but of minimising disadvantage I think i.e. if you are going to have a healthy baby should you be allowed to select traits that will make them unhealthy.

Which brings us back to two questions: i) whether deafness is such a trait, ii) if it is, whether that's what's happening here.

So, i) The parents say it isn't, you say it isn't. I say it isn't an extremely unhealthy trait (like say a hole in the heart) but I can't shake the idea that it is unhealthy simply because I can see no advantages to having a deaf child as opposed to a hearing one, whereas I can see advantages to having a hearing one. BUT these advantages/disadvantages are clearly not life-threatening which makes all the difference to me.

As for ii) I don't think that's happening in this particular case anyway (because both non-biological parents are hereditary deaf).

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

sorry minna, I can't take that seriously at all.

Alan Trewartha, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

RickyT: because it is useful to be able to hear well, cos of predators being noisy and the like?

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

(What if two of the googlers on the Wurtzel thread got together because they wanted a child who would know the beauties of manic- depression?)

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

(Tom: i would think the world is an even more insane place than it is now)

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

[Anyone else reeling from the fact that we appear to be discussing something?]

Alan Trewartha, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

I understood that Katie. What I didn't understand was the assertion that Richard Dawkin's neo-darwinism amounts to "evolution = common sense".

RickyT, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

ETHAN ETHAN now Minna has said that you can make your circumcision point!!

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

RickyT: as i understood it RickyT, Nature sees things that need doing that are sensible and does them because it would be damn fule not to. this to me is common sense. i spologise for using a fucking METAPHOR.

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Example: Our natural predators may well have been noisy. We develop sensitive hearing to detect them. Predators in response become very very quiet - our reliance upon hearing makes us easier to catch. Therefore deaf children - not reliant on hearing are more cautious and therefore more likely to survive. (Notably more likely group for advantageous mutation as well - since the genetically deaf already have genetic mutation from standard line).

Fits Dawkins/Darwin pretty well. As for common sense - if it was that much common sense, why did it take until the late nineteenth century for evolution to come forward as an idea? And the mechanics are still debated now.

Pete, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Katie: who is this Nature? Are you suggesting that there is some over arching intelligence which makes these observations and decisions?

Pete, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

ah Ptee i see where it all went wrong. i was not saying that the THEORY itself was common sense (though i'm sure to Richard Dawkins it is), i was saying that he seems to think that the process of evolution and natural selection progresses along common-sensical lines. i still apologise for using a stupid fucking arts student fucking woolly thinking and thick headed METAPHOR.

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Nature is something you don't wanna mess with Ptee.

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

But Pete your example defies common sense. Even assuming the existence of completely silent ninja predators, what we have is several different evolutionary branches:

uncautious hearing humans - can avoid noisy predators but not silent ones. cautious deaf humans - can avoid silent predators but not camouflaged ones. humans with above average sight and hearing - can avoid all but the quietest or best-camouflaged ones

As it was evolution took a sideways step and the humans who learned to work together to avoid predators and build things to keep them out were the ones who survived hooray.

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Nature sees things that need doing that are sensible and does them because it would be damn fule not to

Fair enough, but this is very different from my interpretation of neo- darwinism.

RickyT, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

actually ISTR that even Dawkings had to resort to using things like "nature" or similar pseudo-personificatons just to express the whole big expressable-only-by-writing-another-book bundle of systems and processes that make up life on this crazy earth. as you well know.

katie, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Which is the fundamental problem with evolution, that the evolutionary choices made seem to make sense so therefore they must be making sense to something before those of us with the sense to notice it came along. Guiding hand o'God?

Actually many evolutionary jumps make bugger all sense at all.

Tom, sorry your argument does not wash. Evolutionary jumps in the predator could mean that pretty much all of an entire human group (and hence even species) could be wiped out within a generation. Let's say instead that a predator develops a sonic based weapon which could disable their prey. Now the ability to hear is actually the thing the predator is counting on. There can be evolutionary advantage in being deaf. Fish do alright after all....

Pete, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

moles are blind because (as nature realised) they do not need to see

deafness may have been an evolutionary disadvantage we had to be wary of the nearby growl of the sabre-toothed tiger: not now — if deafness is today a CULTURAL disadvantage, then changing the culture is surely one of the options to be considered (as liz suggests)... i am a bit dubious about appointing yr baby the vanguard warrior in such a change (issue of abuse, again, from a difft angle) BUT that is by no means an unusual decision for parents to make in re non-mainstream beliefs, progressive or otherwise

signing is a gorgeous language — my sistah signs, and i wish i was better at languages, because then i would too

a board which sprang up from the loins of a music discussion group is (surely) "genetically" inclined (deformed, if you like) to consider hearing a cultural boon

mark s, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Yes Pete but i) no predator has developed a sonic weapon that can disable an opponent*, ii) the disadvantage argument was not initially based in some idea of evolution but in the question as to what advantages if any a deaf child could have today.

*Except of course we did in the form of language.

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Advantages a deaf child could have today. Ability to participate full in deaf culture. All the hearing signers I know say that sign language with regards to understanding is a complete shift away from verbal language due to the linearity context. The difference is akin to understanding a picture and written language. (Not sure if that explains it well but on the basic courses I went on in it even those with partial hearing who had spoken BSL all their lives said that hearing/lip reading was a huge distraction).

Oh and what is the point of a loud growl / roar. It is to communicate fear to the victim. The roar of a lion is part of its weaponry.

Pete, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Wow. This board is fantastic. I wish I had more time to participate. At the beginning of the thread I had an opinion all ready to post but as I read on that opinion was challenged with (nearly) every post and completely new angles were introduced.

I think everyone here has brought up great, and somewhat separate, arguments: genetic engineering, disabilty, culture, and childbearing. Where to start? I have to work so I'll sum up my thoughts quick like.

genetic engineering = bad, deaf from birth is not a disability me thinks (I also think those of us who are hearing cannot rightly call it so as it's only "disabled" from our POV)

culture - it's natural for parents to want their child to be of their culture. Nitsuh is right that culture is not genetic but one could also say these women are just trying to come as close to possible as their own natural child would be

childbearing - Tracer is completely right adoption is often the best choice. women who spend tens of thousands of dollars on fertility treatments and then birth litters are far more offensive than this couple.

I have had thoughts on these topics personally as of late. I was recently diagnosed as Manic Depressive which wasn't a huge surprise since it runs in my family. However I've spent most of adult life in denial that I possess the disorder as well. The realization of the heredity of this disorder and the knowledge of how it has affected my life has forced me to rethink my own ideas of parenting. If I ever do decide to become a parent it will be via adoption as I wouldn't feel justified in passing this disease on to another generation.

However I think there is a difference between deafness and bipolar disorder. Deafness is not a disease. It's like having a congential deformity and having to adapt to the world as a single-armed person or something. Bipolar disorder is a disease that can be very debilitating, possibly fatal, and requires a lifetime of treatment. I wouldn't wish that on anyone.

Samantha, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Pete the key words in your post are "hearing signers" - which leads us back to Nitsuh's question - could a hearing child "participate fully in deaf culture"? If so, this advantage of deafness is removed. If not, then to what extent is that a fault in deaf culture, comparable to the criticisms of the dominant hearing culture for not letting deaf people participate?

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

NB the roar of a lion is not a weapon against prey, since the lion is a fairly intense energy-user anyway (cos it only eats meat) and the last thing it wants is to waste its energy chasing after a frightened prey. It's a weapon against other lions. So is deafness an evolutionary advantage in a lion? No, because while we've been considering how deaf prey could be at an advantage it's harder to see how a deaf predator could be.

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

So then, are there actually any advantages in being deaf over hearing then? Hmmm?

DG, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

STARSAILOR? (sorry, for interrupting the seriousness, i just can't take it for very long)

Alan Trewartha, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Now you mention it Alang, I understand it much better.

DG, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Sorry the point I forgot to make re the hearing signers is that they felt they could mot fully integrate in deaf culture because their first language (and thence their thought processes too) were too bogged down in linearity. (this may intersect with our visual/literal imagination arguments).

Fair enough about the lion, don't know enough to counter that though I'm sure massive roarcan be seen to be a predatory advantage in some situations - though its quite possible I am basing this on Jurassic Park or some such hokum.

If we are talking advantage/disadvantage for the child, is there any advantage in having a communications barrier with the parents that being able to hear will cause (if we are assuming that the Sate will send the child to a hearing school which I think is a pretty safe one)?I am not saying things will be better or worse than if the child could hear but I really don't think it would be significantly worse (or better).

Pete, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

This makes a lot of sense actually, because it makes the cultural shift comparable to the cultural shift between cultures with pictogram writing and ones without (if I've got my terms right - you know, Japan and all that).

Tom, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Sign language is a second language for many deaf people - at least older ones - as well, due to speech 'therapy', not allowing sign language in schools etc. Or for people with less severe hearing impairment (like my mother) who none the less feel closely tied to a deaf community.

A hearing child can feel alienated from hearing parents for any number of reasons. Similarly, even if a child is deaf he/she may not choose to share the same friends, pursuits, beliefs as the parents.

I think I wanted to make those points for a reason, though I'm not sure what they refer to now...

Archel, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

a communications barrier with the parents that being able to hear will cause

if they spend the first 4 or 5 years of their life (before they're old enough to go to school) with their parents in the deaf community, won't signing be their first language? very young children are adept at picking up languages - would the divide between sign and spoken languages be great for a small child? i don't know, but my guess is that they would be more likely to be at a disadvantage in communicating in a spoken language than the other way around

minna, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

" Personally, given that the kid has no say in the matter, I have problems with this. "

-I think this is the real issue. I also agree with the fact that signing would probably be thier first language and they would have to learn to speak properly as a second language, more than likely then they would not be at a disadvantage communicating with thier parents. I also think that, whether they would be at a disadvantage or not would be through no fault of thier own and thier parents should be able to deal with that rather than depriving them of one of thier natural senses and much joy that might come to thier lives as a result of having said sense. I can't even believe that it would be debated or justified at all.

Deadman, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

No I agree Minna - but the problem is that they will probably end up communicating more in the spoken language world merely because it provides more opportunities (which is where the black/poor arguments can kick in). So then being disadvantaged at an early age by having spoken languages as a second language could be a serious problem.

Its a fascinating moral kettle of fish anyway which has been going on for centuries.

Pete, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Well, since I started this whole thing...

Liz, I think you're confusing my own unease regarding conscious choice to specifically have a certain kind of kid with blatant anti-deaf bigotry on my part. That's hardly the case, though as Tom noted, I could well be overlooking something in my attitudes and viewpoints, and your reading recommendation is noted.

I'm not deaf, was not born deaf, have no idea what it would be like not to hear *anything*. And as Mark wryly noted, this is a board that spun off from music discussion, so you can imagine how much being able to hear is important to me as I am. But it is perfectly clear to me that those who are deaf are people, not objects of pity or sterotypes. We certainly would not think anything less of a participant here who was deaf, for fairly obvious reasons -- not just the means of communication, but because we're all in this together.

But like Deadman said, there's something about the *conscious* choice to determine someone else's deafness that disturbs me greatly. Maybe I'm already old-fashioned, though -- maybe this *is* the future and I just have to learn to deal now that it has come to this point. Even so, something about this nags at my heart. I don't believe in god, but I'm strongly hesistant to put us in the place of a deity.

Yet now that I think about it -- is perhaps the greater question how we consider genetics of *all* kinds? It seems to me that the base division is whether genetic predetermination/manipulation is something to be pursued or not. By which I mean -- can it be argued (and I think it can) that genetically-altered food (or animals) and genetically-predisposed babies are part of the same situation? Or are we separating how we manipulate and tweak our own species from other life forms, animal or not?

Not very thoroughly explained or articulated, I realize.

Ned Raggett, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Lack of footnotes/cites = C+.

Dan Perry, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Thanks, Tom, just above you’re more precisely getting at what I was trying to say. Loads of arguments here—and possible those of the couple themselves, although who knows—seem to be reducing themselves to the idea that the deaf and the hearing are in fact “culturally” or intellectually incompatible, an idea I find profoundly and disgustingly cynical and also biologically unsound. I made my “sour grapes” comment above because this line of thinking strikes me as an elaborate critical-theory kind of way of skirting the central issue here, which is that deaf people are people who cannot hear. Period. This is as close to the definition of a “disability” as we can possibly find, insofar as the deaf are un-“able” to perceive a whole sensory dimension that human beings normally can—and more importantly it is strict, in terms of this being the only thing that “deafness” involves. Now I am completely convinced by the argument that this experience leads people to develop other modes of communication and interaction and even thinking that are very valuable in and of themselves, a surrounding “culture” that they may think they prefer to what they perceive as the culture of the hearing and thus wish to share with their offspring—but this culture is an adaptive consequence of the hearing impairment, not part and parcel of it. A hearing child raised by these two would still be profoundly shaped by that culture—their need for the child to lack the same thing they do strikes me as maybe not ethically horrific but predicated on possibly self-deluding logic that makes the result end up looking very very selfish, insofar as deliberately imposing that “lack” on the child is here supposed to serve as a way of forcing the child to choose their “culture,” a way of shaping the child in their own image, possibly irrevocably. Mostly it just plays into a really strange sort of hearing-versus-deaf essentialism that I don't like in the least. (Plus any deaf person who actually believes in rigid, unescapable, and incompatible "cultures" or behaviours or ways of thinking that are inherent in hearing and deafness should probably never complain about the hearing maltreating the deaf.)

As for deafness itself, the root of my thinking here is that while information is neutral, the ability to gather it is inherently good, and lacking a particular conduit of information inherently bad. Perhaps I am just stubborn but I do not see how this can be argued with.

Nitsuh, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Ouch sorry that reads horribly: I think what I'm saying is "hearing/deaf essentialism, classic or dud," and then "DUD."

Nitsuh, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

do the x-men evah have sex?

I read some truly foul fan fiction on this topic a while ago. The answer is "yes."

adam, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Fascinated by the discussion, but this part of the article grabbed me:

"The couple have said they will let him decide when he is older if he wants to wear a hearing aid."

By then, who says that the child will _want_ to wear one? Self-consciousness begins in childhood. It matters what the other kids think of you. If, for example, at age 6 or 7, the child decides he wants to try wearing a hearing aid. Would he/she make that choice out of need...or peer pressure? By then, whould they even care about what sounds they might be "missing"?

It's a step down from cloning, IMHO: here, the parents choose to begin playing God. "Give him (or her) blue eyes, long hair, the IQ of a genius....and oh yes, please make him deaf, so he (she) can understand what it's like to have a disability." It's only an example, but the point (I hope) I'm making is: this takes the surprise out of childbirth and child-rearing. Sure, you may be able to prepare for all the "problems" you know your child will face, but where's the joy in self-discovery the kid should have?

(rant over...)

*ahem*

Despite the "disability" I was born with, some of my best moments were hearing the birds twitter outside my window, a shared laugh with a friend, my first ear-splitting rock concert....

But tis scary to think that child will never know what that's like because of the parents' selfishness.

Nichole Graham, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

The thing no one's mentioned is that most children don't relate much to their parent's "culture", and at least have a choice. If the couple here had a hearing child it would almost certainly choose against them (no child would choose to have their hearing removed (minna's earlier point = U&K)), so as if to prove the value of deaf culture (and their own worth), they're removing the possibility of it being disproved.

Which is pretty much what the problem is: That at least from the article they seem to be using their children to prove a point.

(This post is most likely nonsense - please ignore it)

Graham, Tuesday, 9 April 2002 00:00 (twenty-three years ago)

Which is pretty much what the problem is: That at least from the article they seem to be using their children to prove a point.

This is precisely what, I suspect, bothers many of us. It is disturbing to believe that parental love can be reduced to a matter of "political correctness." Ideally we are raised to believe that our parents will always love us unconditionally. Unfortunately, this couple proves that some parents have only their own interests in mind.

Nichole Graham, Thursday, 11 April 2002 00:00 (twenty-three years ago)

Hey Nichole, I told you to ignore it.

[I didn't kill the thread. And somebody agrees wiv me.]

Graham, Thursday, 11 April 2002 00:00 (twenty-three years ago)

[to which I can only say HUZZAH]

Graham, Thursday, 11 April 2002 00:00 (twenty-three years ago)

one year passes...
This was a great thread.

Pete (Pete), Tuesday, 13 January 2004 14:02 (twenty-one years ago)

That it was.

Ned Raggett (Ned), Tuesday, 13 January 2004 14:11 (twenty-one years ago)

four years pass...

THE DEAF BABY IS RAISING TOO MANY INTERESTING QUESTIONS

and what, Thursday, 24 January 2008 15:52 (seventeen years ago)

When I skimmed through this just now that was the line that leapt out.

Ned Raggett, Thursday, 24 January 2008 15:56 (seventeen years ago)

i think i prefer nu-ILX where this question would be answered with a flood of goatse jpegs

DG, Thursday, 24 January 2008 15:58 (seventeen years ago)


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