agoraphobia

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Someone I know has apparently been diagnosed with this. I've briefly read up on it in the DSM-IV (or whatever it's called) but I was wondering what its everyday impact is on someone's life. Do you know anyone who suffers from this?

electric sound of jim (electricsound), Thursday, 3 October 2002 03:07 (twenty-three years ago)

me.

jess (dubplatestyle), Thursday, 3 October 2002 03:24 (twenty-three years ago)

and both my birth father and his mother, although i barely know them enough to comment.

jess (dubplatestyle), Thursday, 3 October 2002 03:25 (twenty-three years ago)

not personally, but i have heard it bandied about a lot lately and the common use of it now seems to be anyone who gets panicky when confronted with people, outside areas and unfamiliar places.
i did work with a guy whos' ex was diagnosed with the official version. she was unable to leave the house AT ALL and they had 3 kids so you can only imagine the strain that placed on the entire family.
i dont think it is the only reason they split up, but i would say it definately played a big part.
what IS the 'official' thing on this? ( i'm too lazy to look it up )

donna (donna), Thursday, 3 October 2002 03:27 (twenty-three years ago)

Stay away from the DSM-IV - reading it will drive you nuts.

geeta (geeta), Thursday, 3 October 2002 03:45 (twenty-three years ago)

i read that on the DSM-IV

mark p (Mark P), Thursday, 3 October 2002 03:48 (twenty-three years ago)

i guess, jim, that the everyday impact on someones life depends on what they normally do every day. if the case is severe i imagine they might become house-bound like my work-mates ex, or perhaps they may suffer panic attacks when in unfamiliar surrounds as the key seems to be 'not feeling safe' and 'fearful of being away from safe-haven ie: home'
this is what i perceive it to be, i think i had a mild sort of thing of it years ago following an armed robbery at my workplace. it passed, but for a while i found i could drive to the shop but once there the mere thought of getting out of my car turned me into a hyperventilating mess.
i do hope your friend is getting the appropriate help, and that those close will be understanding as disorders like this can be harder to cope with if people say such things as 'o get over it, chin up etc etc'

donna (donna), Thursday, 3 October 2002 03:56 (twenty-three years ago)

My grandma is agoraphobic, and it effects her in one major way--she almost never leaves the house. Which is very sad, and has definitely had a negative impact on her life and her family relationships. But on the rare occasions she does go outside, she doesn't noticeably freak out, or anything. So I agree with Donna, in that I hope your friend is getting help--it seems like something that could possibly be overcome with therapy or anti-anxiety medication. Unfortunately, my grandma's of the "anyone who goes to a shrink is really crazy" school of thought, so she's stuck inside.

nory (nory), Thursday, 3 October 2002 16:18 (twenty-three years ago)

four months pass...
my agoraphobia has been awful lately...normally it varies from just an kind of semi-permiable wall that i need to push a little harder to go out and do things to an actual uncomfortability while out of the house, ranging from slight nervousness to full blown panic. but lately, i haven't been able to push myself to do anything. the very idea of leaving the house makes me want to throw up. so i don't. for long stretches, even multiple days at a time, despite the fact that this makes me feel like shit. we went out in the afternoon for my birthday yesterday and i felt like i was going to explode the entire time. i fear i may be losing my mind, but i don't know quite what to do about it.

jess (dubplatestyle), Saturday, 22 February 2003 23:32 (twenty-two years ago)

(haha why am i telling a bunch of interweb mentalists this?)

jess (dubplatestyle), Saturday, 22 February 2003 23:39 (twenty-two years ago)

(God knows). Don't sweat it, I know exactly what you mean. As a "cheer up", this little agrophobe went to an unfamiliar city for two days and felt better about it and coped better with it than he has done for the last eight years or so. It'll be your turn next week.

Lynskey (Lynskey), Saturday, 22 February 2003 23:51 (twenty-two years ago)

anxiety problems :-( it's strange - there were plenty of times when i was younger that i felt anxious or nervous, sometimes very much so. but there was a point at which it started to be SO NOT OK!! like "i've got to get out of here right now!" i can remember the first time that i felt this way. the last year or so has been much better, although part of this might be because i don't get out much.

as lynskey says, getting out of your routine can be helpful.

i would STRONGLY recommend eliminating coffee and alcohol, esp. coffee.

ron (ron), Sunday, 23 February 2003 00:01 (twenty-two years ago)

I second ron on the suggestion of eschewing caffeine. I'm not agoraphobic but it does make yr life better, trust me. Also caffeine exacerbates tinnitis.

Millar (Millar), Sunday, 23 February 2003 00:56 (twenty-two years ago)

Perhaps meditating might help with the panic attacks, as well? I dont mean sitting and chanting meditation, its more an ongoing thing, when you are out somewhere and feel unsafe, kind of get into an internal dialogue to work through the panic.

It doesn't always help me, but it can work quite well. I have to constantly self-talk and check myself, otherwise I get into all kinds of states and cope in the worst ways possible (booze, smokes, drugs etc) and thats no answer :(

Trayce (trayce), Sunday, 23 February 2003 06:19 (twenty-two years ago)

Hey Jess, I've had this problem in the past too. For me it's usually been tied to depressive mood swings. Avoiding getting like this has usually involved medictation for me. Anxiety-reducing ADs have been the most effective. Along with friends who know what's up and insist on dragging me out.

That Girl (thatgirl), Sunday, 23 February 2003 06:28 (twenty-two years ago)

Jess- I've never suffered from any of this but I hope you get through this 'difficult period' (don't know quite how to phrase it). all the best.

Julio Desouza (jdesouza), Sunday, 23 February 2003 21:46 (twenty-two years ago)

two months pass...
I was just going to post something about "any agoraphobics here?" 'til I found this thread. Kewl.

Me, I've been "functionally" agoraphobic since I was about 20 y.o. (I'm now 36). My father's father was severely afflicted, as was an uncle on my father's side, so it definitely runs in the family. I call myself a 'functional' agoraphobic 'cos my life has never been hampered to such an extent where I couldn't do what I absolutely had to do -- get up, get to work, interact w/ coworkers, etc. -- but it has played a huge role in what I've done with my life and my interactions with others. Reading Jess's experiences and hearing about what my grandfather and uncle had to go through, I do feel fortunate, to some extent, but man what I would do to just be "normal" in this respect.

I got out of jobs in part because of the stress involved in public speaking, meetings, etc. (my main dysfunction). I've missed friends' weddings, blown off "big" church events, and other stuff just because the thought of attending such formal events put the fear of god in me. Also attendant with this phobia is a moderate fear of flying, so that has made the decision not to attend friends' weddings or other big events out of state even easier.

Anyway, I'm a stubborn motherfucker, and I've opted not to choose therapy or pharmaceutical intervention, mainly because I never want to feel that, if my condition keeps worsening, I have nowhere to go after that. That would totally suck. So, this means more sweaty palms and racing pulses during cramped staff meetings at work, waiting for an uncrowded subway car to come along before I step foot in it, worrying about hurling during every flight I take, etc....for those "big" days (like my wedding last year), I'll either cross my fingers and I hope I don't totally fucking freak out or take a Valium (borrowed one from my mother-in-law on my wedding day, and it was all good).

Anyway, if others here are similarly afflicted, I'd love to hear your stories. I have plenty more, too.
Anyway,

Baked Bean Teeth (Baked Bean Teeth), Friday, 25 April 2003 03:51 (twenty-two years ago)

agorophobia is a stone drag; no two ways about it. sucks. sucks.

i suffer from it very badly at times. people on both sides of my family have had very bad anxiety problems as well, so i guess the genes are at least partly to blame.

i got to a point last year where i could literally almost not leave the house. i have had bad experiences with doctors, shrinks in the past, so i refused to seek help for the longest time until i pretty much had no choice.

i decided to go to an acupuncturist...who's been helping me, but the one of the first things he said was 'hey, traditional chinese medicine is an amazing thing, but it's not magic; it can't necessarily cure everything.' so he suggested going to a psychiatrist to get something to help 'take the edge off'.

uh, right now i take something called buspirone (buspar) it's non-addictive...basically what it does is quiet down the part of your brain that makes you hyper-alert, over-worrying...it helps with muscle tension, etc. it is a very safe drug with hardly any side effects, it's been around for awhile, so it has a proven safety record...it's something they give to old folks who have anxiety problems, as it is tolerated very well.

i also sometimes take very small doses of clonazapam, (klonipin, which i think is the ugliest-sounding name ever, which is really saying something as far as the world of prescription drugs go) if i'm anticipating doing something particularly stress-inducing. its a benzodiazapene (sp?), like valium or xanax. you gotta be careful with that stuff, though, because if you take it on a regular basis, your body becomes habituated to it. no big deal if that happens, but you just have to taper off of it slowly, under the guidance of your physician/shrink. it's bad to suddenly stop (go cold turkey).

the buspar is a little weird, initially it can make you dizzy for 15 minutes or so the first few times you take it, but eventually the dizziness ceases to occur. oh, and it takes at least two weeks before it starts working. but it does work! i personally hate taking medication; i don't even take aspirin or whatever when i get a headache, but i take this stuff without any problems.

i recommend trying all options. do what it takes. your life is worth it. taiji, yoga, meditation, saying mantras, learning coping skills for when anxiety/panic sets in, physical exercise, dancing, self-expression, support from friends, psychological counseling, spiritual practice, cutting out caffeine/sugar, getting enough of the right vitamins/minerals (b vitamins are very important, as are some minerals like calcium, magnesium), progressive muscle relaxation, massage/bodywork, being in touch with your emotions...there are tons of stuff you can do to help yourself.

it's important not to feel ashamed. i would always feel totally ashamed about being anxious, like it was some personal weakness/character flaw i had. it ain't your fault; ain't nobody's fault, it just is. and, it need not rule your life. i've been getting somewhat better at not adding to the problem by beating myself up about it.

i'm sorry for anyone who has to deal with agoraphobia/anxiety/panic attacks (or any other physical or psychological ailment, for that matter) it really really sucks and it feels so cruel and unfair. but it's not the end of the world. you can totally work through it, just be open to options. when your life starts coming back, you will fucking feel unbeatable.

footnote to this...ssri drugs like paxil are also supposed to help with anxiety problems. personally, they're not for me...i have many reservations about them, but if they work for you, then more power to you. the bad thing is to self-medicate; like if you have to drink a couple beers before leaving the house, it's eventually gonna catch up with you. and your liver and all that stuff.

if as the result of suffering, one can be of help to someone, then it makes it at least a little worthwhile...so if anyone ever needs advice or just wants to commiserate or whatever, i'm here for you, brothers and sisters. seriously. you can feel free to e-mail me, if you like. i wish you all and anyone who struggles with anxiety the best from the depths of my selfish little heart.

"it's gonna be alright. wait and see. wait and see."
--a very wise man

Dallas Yertle (Dallas Yertle), Friday, 25 April 2003 06:29 (twenty-two years ago)

I don't think I'm a full-blown agoraphobe; I love traveling, walking around aimlessly, stuff like that. I'm not really a nature person, but I like the outdoors. I think what Jess said here applies to me sometimes, though:

normally it varies from just an kind of semi-permiable wall that i need to push a little harder to go out and do things to an actual uncomfortability while out of the house

...like no matter how much I'm enjoying myself while I'm out, there'll always be a little dread-filled voice in my head urging me to go home. And on days when I don't have to be anywhere, it takes me forever to leave the house.

Jody Beth Rosen (Jody Beth Rosen), Friday, 25 April 2003 06:54 (twenty-two years ago)

oh yeah, making yourself go outside (even just baby steps) is crucial. it's all about practice, deconditioning/reconditioning etc.

Dallas Yertle (Dallas Yertle), Friday, 25 April 2003 07:10 (twenty-two years ago)

Sorry, this isn't about agoraphobia but - someone up there mentioned something about caffeine aggravating tinitus? Is this true? (Maybe tinitus should have it own thread.)

kate, Friday, 25 April 2003 07:18 (twenty-two years ago)

I don't have agoraphobia, but I'm fairly social phobic, and I think that can be similar in some ways. I can get incredibly stressed out and sweaty even in fairly simple situations sometimes, which I know is insane, but it's hard to overcome. You'd think being online might be therapeutic, but apparently it isn't...

ChristineSH (chrissie1068), Friday, 25 April 2003 13:08 (twenty-two years ago)

social phobia...oh, that sucks as well. making phone calls and stuff like that can be torturous.

i think some of the worst aspects that go along with these things include the way one tends to exacerbate the problem by feeling guilty and imagining (rightly or wrongly) that one is making others feel uncomfortable when they witness one's manifestations of anxiety...

as well as the gap that exists between you and other people who've never had such problems; no matter how sympathetic they are, you feel that they're simply unable to appreciate what your subjective experience of anxiety is like; how miserably frustrating it can be...

Dallas Yertle (Dallas Yertle), Saturday, 26 April 2003 11:29 (twenty-two years ago)

Making phone calls can be a chore sometimes, but it's in-person stuff that really does it.

Not many people understand it, I don't think. Most people claim to, but on this level it's not all that common. (This is really closely related to the 'hate yourself' stuff, I think... personally, not enough POSITIVE experiences of other people seems to always be the root of these issues.)

ChristineSH (chrissie1068), Saturday, 26 April 2003 12:53 (twenty-two years ago)

yeah...i guess it goes without saying that it's incredible when you spend time with someone who really appreciates you on a deep level, and has the ability to make you feel it. of course, from your own side, you have to be open to the experience. it can be easy to shut down your heart, even as people who you respect are sincerely saying 'i love you, i love you, i love you'...

one can't blame everything, of course, on early negative social experiences (less-than satisfactory parents and so forth) but it sure does create a lot of obstacles down the road which can be difficult/tricky to overcome.

it gets so confusing. am i just a jerk? or is it that the other person is a jerk? or some combination thereof?

Dallas Yertle (Dallas Yertle), Saturday, 26 April 2003 13:02 (twenty-two years ago)

I've just blown out the biggest meeting of my career because I couldn't face going into a city. There is no-one I can get in touch with to talk about it and I've wound myself up to the point where I'm too hysterical to phone up and re-arrange it. I now find myself pacing from room to room talking to myself like Gollum.

I've had ten years of this shit and I'm am really, really sick of it now. And what's worse is I knew this would happen and did nothing about it.

anony, Tuesday, 6 May 2003 12:37 (twenty-two years ago)

it's alright...don't beat yourself up.

if you're really, really sick of it, maybe you can get yourself to a physician/psychologist/psychiatrist/professional of some sort whom you can trust and initiate a good rapport with (may take a few tries). it's not necessary to have to suffer so.

there is help available, if you earnestly seek it out...

& it may surprise you how sympathetic people may be to what you are struggling with...no need to be ashamed/angry & pile more bad on top of bad. (but if you do, that's okay too.)

your personal happiness and well-being are infinitely more important than a career.

Dallas Yertle (Dallas Yertle), Tuesday, 6 May 2003 13:30 (twenty-two years ago)

five years pass...

This is getting worse again.

It's not even the low-level stuff like not wanting to use the phone or speak to people in shops. I am actually having trouble leaving the house at the moment. Haven't done the shopping, haven't done the laundry in weeks.

It's not that I'm *afraid* that something bad will happen if I leave the house, I just don't *want* to.

I'm also terrified of having to spend money, which is kind of understandable, but to the point of not going out because I don't want to pay for a bus pass.

Craft Punk (Masonic Boom), Tuesday, 3 March 2009 12:15 (sixteen years ago)


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